COMING UP FOR 1 MONTH (NO PHOTOS!)

3 minute read time.

Hi

Tuesday will be the 4 week anniversary since my operation to remove the MM and have the SKIN GRAFT and the SNB

A 4 week relfection.

  • From referal from GP to MM clinic to now = less than 3 months.
  • If i had not scrapped the mole in the shower and causally asked the GP to look at it at an appointment for BP then i wonder how long it would have been before I had taken it seriously.
  • St Georges I find can not be faulted on the care they provide. I was kept informed all the time time as to what was going to happen, the complications, worse case scenarios and ongoing care etc.
  • Saskia and Carol, the MacMillan nurses at St Georges are amazing and definately 2 people you want on your side. just to hear Saskia say "peter... its normal" was exactly what i wanted to hear.
  • When you have an appointment have the questions written down and ask them all. doesnt matter how silly you think a question is, they will answer anything you have to ask and dont leave the appointment until you are happy with the replies, dont remember the question you forgot to ask them on your way home.
  • Surround yourself with people who know you and people who care about you. I had my parents stay for near 4 weeks and it was a god send. Putting aside the fact mum is a great cook and dad a great handyman, i could not have asked for better carers. Also getting a load of get-well-soon cards from people really keeps you positive. Being online here is also great for positiveness.
  • Be patient, the healing process takes time. This was a hard lesson to learn... i wanted to be back at work a week after the op... well that was never going to happen. I am just lucky I have a job to go back to that has never put pressure on me to return too early and to get back into my ob steadily.
  • something that has been on my mind for the last week... having read here and on facebook about what other people have gone through. i almost feel my MM cut out and patched up seems to be insignificant to other peoples traumas. I guess MM is MM and thank goodness the SNB came back negative, but i think i am not going to complacent about it not returning. I am learning to use mirrors to see around the back of my body for tell tale signs etc. I think the whole experience has made me more vigilant about my own body and to really take the time to check it. Before this all happened, and even at the results clinic of the mole biopsy, i still thought that cancer happens to other people. Now i want to shake all this pale skinned, blue eyes gingers like me that however much they try they are never going brown!

I have an appointment at the plastics dressing clinic on Monday and they are going to try and sort out the over granulation with some silver nitrate or something similar. They will also check the going to make sure all the infection i had has gone. The Skin graft doner site has pretty much cleared now. I will take photos on Monday and post them here. I am thinking about calling the local rags to see if they would like to do a piece on MM/GP 2 week rule/ST Georges etc etc Maybe as a warning just before summer comes?

Am i missing anything here?

Best wishes to everyone, patients and carers.

Peter

Anonymous
  • FormerMember
    FormerMember

    Hi and thank for writing.

    I had 5 nodes taken out for the SNB and they all came back negative,.. the worse things is the wait for the result...!

    my mole was almost same place but on left leg. the mole was half the size of my thumb nail and the wound is about 8cm diameter but has now reduced in depth from 4 - 3.5 cm and i am hoping it will reduce more. i had the skin graft but because so much fluid gushed out the wound, at each appointment for dressings changed they told me the take of the graft was less and less and less.  but as you can see its healing ok now and apart from the supergranulation its all going fine,

    the only infection i have had is in the groin but that cleared with antibiotics.

    i am looking forward to a year on and to think of this as the month that was.... for now its only a month and i guess i am just too damn impatient..

    i will let you and everyone know how i get on with the newspapers.

    take care

    peter x

  • FormerMember
    FormerMember

    Hi Optical Boy

    I haven't spoken to you before but just wanted to say that your blogs are great and although some of the photos are rather graphic I think you should continue to slam it home to everyone to be vigilant.  

    My best friend's husband died aged 42 with MM and he never went out in the sun so it just goes to show it can happen to anyone.

    Good luck

    Lorraine

  • FormerMember
    FormerMember

    Hi Lorraine... thanks for the message...

    The posts have warnings on them about the photos as requested... but I post them as a reality check

    Sorry to hear about your friends husband... old age is the only way we should die.

    Thanks again for the post

    Peter

  • FormerMember
    FormerMember

    Hi Peter

    Your four week reflection seemed to take in every  important aspect in your journey with MM, and will certainly be of help to others in a similar situation.

    Although I am so sorry you have to be here-  for me Peter it has been excellent following your "case" as your surgery is so similar to what I had three years ago.  The photographs have been so interesting seeing how gradually the area is beginning to heal.

    You have had wonderful attention from your hospital - sadly this isn't the same for all of us, - and having just been through months of waiting for tests/results reference my husband and prostate cancer we have come to the conclusion that it is essential to start off at a hospital that deals with cancer and have the top consultants  (like you did at St Georges)- not these smaller hospitals who have to refer you on but seem to want to keep you waiting before doing this.

    Well done St Georges I say, - and well done Peter and your Mom and Dad too, - they have obviously paid a large part in your recovery, - and I know your Mom would have only been too delighted to cook up some nourishing meals to aid your recovery.

    With best wishes to you Peter and don't overdo things, -

    Keep up the good work

    Lynn xx

  • FormerMember
    FormerMember

    hi lynne... how you doing?

    sad mum and dad had to go home... i was hoping they would come back friday for dads 80th as i am still not 100% on my legs yet... groin playing up a bit when i walk .... so i wont be going back to theirs and they dont really want to come back again so soon..... but we will have a party later in the year....

    thanks again for the messages...

    take care

    peter x