WJ grade 3 Astrocytoma cdkn 2a/b non-deleted

  • Change of chemo

    5 tablets of 40mg dose and then 6 week repeat. I’ll probably feel it 3 weeks in. I’ll let you know. It’s three weeks (when it’s meant to kick in)and no change in my self (usual tiredness and slight headache) bloods next in thr...
  • New chemo

    Slight growth based on drs meetings from my last MRI. So changing to just CCNU treatment. 1 tab every six weeks Hope someone finds this helpful 7th Nov 2023 Started my Lomustine last night with one antisickness. Woke up feeling no...
  • Oct 2023

    It’s now Oct 2023 I’ve had my third MRI now and the halo of the tumour has grown but very slightly. I’ll have my blood test for the next chemo (temozolomide) 280mg a day for five days
  • Diagnosis

    it was diagnosed as a grade 3 strocytoma cdkn2a/2b
  • Operation Jan 2023

    So due to strikes and having a kidney stone 5mm and rushed surgery early december. I had my tumour out in jan 2023. Unfortunately only 60% was removed and it was diagnosed as a grade 3 strocytoma cdkn2a/2b. I have had radio therapy and am now on chem...