It’s now Oct 2023 I’ve had my third MRI now and the halo of the tumour has grown but very slightly. I’ll have my blood test for the next chemo (temozolomide) 280mg a day for five days
So due to strikes and having a kidney stone 5mm and rushed surgery early december. I had my tumour out in jan 2023. Unfortunately only 60% was removed and it was diagnosed as a grade 3 strocytoma cdkn2a/2b. I have had radio therapy and am now on chem...
W J
Hi I’ve put this in the welcome page but though I’d put it copied in here and my progress. I have a grade 3 astrocytoma cdkn2a/2b. I discovered or should I say symptoms began last year during covid.jan 2022. I woke up ( having o...
I’m a north wales man of 46. I have my partner who I love and parents that are great and caring. My journey through this has only begun. And it’s with their help and support I’ll see where it leads me.
Astrocytoma grade 3 idh1 mutan...
