WJ grade 3 Astrocytoma cdkn 2a/b HD

  • Walton neurosurgeon

    We l had my video call (a little late as he was in surgery) with Walton neuro-surgeon. And he seems it’s ok for me now to be under just my normal consultant now At my chemo hospital ( I don’t like to give names.). He was in the same feeli...
  • Star-Date 3-3-2024

    Feels better now, but do get throbbing going on on the right hand side but always has that in general through my noggin. But most too but I control it well. Chat with the surgeon/oncologist Tuesday. 
  • Sun 25/2/24 Sore scar

    My scar has been aching today and a little sore. Tender at the side and feels a little different but my family says it looks ok. So I’ll stop poking it
  • Kidney ache

    I did have a kidney op before my surgery or decided to as it might cause problems 5mm stone with a 3mm left. So I forget to put this in, but about 3-4 weeks in I tend to get aches 3-4/10 pain. So I’m drinking plenty of fluids which I’m me...
  • 20th feb 24 headache and low energy

    Well it’s half way through my limousine 6 weeks, where I am meant to be at my low. I’ve got headaches but not on my tumour side. I’ve been really up and down in the energy. And super tired. Sleep has been broken and a few aches. Bir...