WJ grade 3 Astrocytoma cdkn 2a/b HD

  • Moody Moo

    One of those days today, waking up on the wrong side of the bed and snapping at everyone. I realise it after but at the time it’s like being in abottle looking out and unable to stop  headaches bouncing side to side but ok, and the arm and...
  • Jan 18, 2024

    Have had some head aches over last couple of weeks only a few in my tumour side (right). Mostly my left, but I’m blaming that on my new glasses. My eye sight has deteriorated a bit, but I’ve had a bumpy ride. Still losing my cool and get ...
  • Christmas

    My stomach is not too bad now. Had a got sleep as I was so tired. Anyway Happy Christmas  all x
  • Few days after 2nd dose

    Nausea really, through the night, so unsettled sleep and poorer appetite; feeling a bit better on third day but tired
  • Dose 2

    21 Dec 2023 starting my second dose tonight, delayed a couple of days as my anti biotic course hadn’t finished.