Hello All
I have not done any blogs for months although I log in every day to see how you all are. A quick recap for those of you who don't know me. Diagnosed last June with acute myleoid leukaemia - right out of the blue - no previous symptoms but felt faint one morning when out cycling. I have the strange chromosome 5 problem which meant that chemo was only going to give me a very very slim chance so I decided not to take it. Was given about 8 weeks to live but am still here 8 months later, Only treatment has been blood and platelet transfusions and I have really been pretty well.
However I now have the chance to take a new treatment lenalidamide which is apparently effective in getting rid of this chromosome. If that works - onto chemo (yuch) and if that works onto to stem cell replacement (no picnic either I know). So journey starts this week at the Western General in Edinburgh for screening - bone marrow asp - bloods ecg etc., Have to go Wed and Thurs for this. If I am fit enough then onto the new trial drug.
A bit scary as I am so well at the moment and I will basically make myself very ill with chemo but the haematologist at the Western did spell it out to me that I have been very fortunate in being so well for so long but that it cannot continue and can only get worse progressively or roar up into full blown AML.
Will try to post fairly regularly. Thanks to Teri and Alan Gerrard for the help they have given me so far through PMs. Wish me luck guys?
