has anybody had long lasting reactions to chemo

1 minute read time.
hi everyone ,i have finished all my treatment now for breast cancer .my last radiotherapy session was 21st of jan09. i had chemo last year starting in july 08 on the EC regime then after three months of that every three weeks went on to pacitaxol this was stopped after my fourth cycle due to bad side effects including numbness of fingers & toes plus very bad bone pain. these symptoms have never stopped .yesterday i was talking to my macmillan nurse & mentioned the symptoms & she was quite shocked she then asked my gp to vist me which he did this morning to do some neurologial tests which included me closing my eyes while he stuck pins in me .anyway to cut a long story short he then imformed me that the numbness could be a sign that the cancer could have come back this time in my spinal chord to say i was shocked is an understatment but i am sure that i have read somewhere that chemo effects can last a long time sometimes being permenant . i would rather have the effects than the cancer back as i am sure you will all agree. i was only told at christmas that every thing was clear so to be told this now seems so unfair . so i would be gratefull if anyone out there has had the same problems with effects from pacitaxol thanks for listening love n hugs theresa xxxxxxx
Anonymous
  • FormerMember
    FormerMember

    hi everyone thanks for your advice it has helped me so much . i wasn't worried about the numbness before just took as a side effect & that in time it would clear up. after reading your comments i now feel this way again as everyone seems to be discribing the same thing . the only other symptom i have is a painfull neck which hurts when i lay down but there again i have worked in care most of my life & did injury my neck years ago . & have had pain in that area before though it is more intense now. my oncologist told me though that this could be because of the chemo thining bones & also bone pain can often be related to bonemarrow repairing its self . so it was a bit of a shock yesterday when the gp said that,hopefully the scan will be soon i will let you all know what happens thank you all again so much your support means so much love n hugs theresa xxxxxx

  • FormerMember
    FormerMember

    hi everyone thanks for your advice it has helped me so much . i wasn't worried about the numbness before just took as a side effect & that in time it would clear up. after reading your comments i now feel this way again as everyone seems to be discribing the same thing . the only other symptom i have is a painfull neck which hurts when i lay down but there again i have worked in care most of my life & did injury my neck years ago . & have had pain in that area before though it is more intense now. my oncologist told me though that this could be because of the chemo thining bones & also bone pain can often be related to bonemarrow repairing its self . so it was a bit of a shock yesterday when the gp said that,hopefully the scan will be soon i will let you all know what happens thank you all again so much your support means so much love n hugs theresa xxxxxx

  • FormerMember
    FormerMember

    hi everyone thanks for your advice it has helped me so much . i wasn't worried about the numbness before just took as a side effect & that in time it would clear up. after reading your comments i now feel this way again as everyone seems to be discribing the same thing . the only other symptom i have is a painfull neck which hurts when i lay down but there again i have worked in care most of my life & did injury my neck years ago . & have had pain in that area before though it is more intense now. my oncologist told me though that this could be because of the chemo thining bones & also bone pain can often be related to bonemarrow repairing its self . so it was a bit of a shock yesterday when the gp said that,hopefully the scan will be soon i will let you all know what happens thank you all again so much your support means so much love n hugs theresa xxxxxx

  • FormerMember
    FormerMember

    hi everyone thanks for your advice it has helped me so much . i wasn't worried about the numbness before just took as a side effect & that in time it would clear up. after reading your comments i now feel this way again as everyone seems to be discribing the same thing . the only other symptom i have is a painfull neck which hurts when i lay down but there again i have worked in care most of my life & did injury my neck years ago . & have had pain in that area before though it is more intense now. my oncologist told me though that this could be because of the chemo thining bones & also bone pain can often be related to bonemarrow repairing its self . so it was a bit of a shock yesterday when the gp said that,hopefully the scan will be soon i will let you all know what happens thank you all again so much your support means so much love n hugs theresa xxxxxx

  • FormerMember
    FormerMember

    don't know what happened there  must have hit the button to many times lol love n hugs theresa xxxx