has anybody had long lasting reactions to chemo

1 minute read time.
hi everyone ,i have finished all my treatment now for breast cancer .my last radiotherapy session was 21st of jan09. i had chemo last year starting in july 08 on the EC regime then after three months of that every three weeks went on to pacitaxol this was stopped after my fourth cycle due to bad side effects including numbness of fingers & toes plus very bad bone pain. these symptoms have never stopped .yesterday i was talking to my macmillan nurse & mentioned the symptoms & she was quite shocked she then asked my gp to vist me which he did this morning to do some neurologial tests which included me closing my eyes while he stuck pins in me .anyway to cut a long story short he then imformed me that the numbness could be a sign that the cancer could have come back this time in my spinal chord to say i was shocked is an understatment but i am sure that i have read somewhere that chemo effects can last a long time sometimes being permenant . i would rather have the effects than the cancer back as i am sure you will all agree. i was only told at christmas that every thing was clear so to be told this now seems so unfair . so i would be gratefull if anyone out there has had the same problems with effects from pacitaxol thanks for listening love n hugs theresa xxxxxxx
Anonymous
  • FormerMember
    FormerMember

    Hi Teresa, sorry i am no help what soever, but just wanted to let you know i am keeping my fingers crossed that it will all turn out alright for you. Keep positive!!!!!!!! Love Jayne Kathryn  xxxxxx big hug

  • FormerMember
    FormerMember

    Hi Teresa

    I only finished my Chemo at the end of November,l get cold numb feet.However my boss has had Non Hodgkin Lymphoma finished his Chemo nearly a year ago and still gets pins and needles in his hands and feet. I understand from sources that the drug takes a year to clear your system. I hope this is the case for you and has been of help, after getting to the end of your treatment I can't imagine how you must feel.

    Love

    Caroline

  • FormerMember
    FormerMember

    Just wait until you get a proper diagnosis.  Your GP was preparing you for the worst,  but the worst is a bit more unlikely, so don't panic yet.  

    I finished my treatment last year, and I still get twinges and pains and all those unsettling things that can worry you.  Will you get any further diagnostic treatment?  An appointment with your oncologist.  A scan?  Just wait until you know for sure.  It may sound Pollyanna ish, but it has always worked for me.  

    love

    Rwth

  • FormerMember
    FormerMember

    hi everyone thankyou for your replys sorry forgot to mention in my blog my gp has recomened that i have a ct as soon as possible . he said he was going to write up his evaulation as soon as he got back to the surgery and arrange a scan via my oncologist so it shouldnt be long before i go for one my next clinic appointment is 6th march & he said he wanted it before then so hopefully it will be asap . thankyou for your support in this your replys have gone some way in reassuring me lots of love n hugs theresa xxxx

  • FormerMember
    FormerMember

    Hi

    I finished chemo in september (docetaxol) and still have a numb feeling in my fingers and toes particularly in the evening, when I mentioned it to my oncologist he told me it would take a while for the nerve ending to repair themselves.  I think it would be well worth talking to your oncologist as he is the specialist.

    lots of love

    melxx