Post 445: Special. You are special.

3 minute read time.
Post 445: Special. You are special.

Post 445: Special. You are special.

In all my recent posts I’ve concentrated on myself (as usual), My Darling and her bruised calf, and Mr Vicious, who is slowly becoming an older gentleman rather than the irascible cat he once was.

The heat has been one thing, but time keeps dragging us all through the ups and downs of ordinary life whether we’re ready or not.

As the days fly by I find myself worrying about life and love, family and friends, the living and the dead.

But time keeps ticking.

Like the clock during a football match, it never stops.

The thing is, I don’t really want to talk about me today.

I want to talk about someone else.

Someone standing at the very beginning of a journey I know only too well.

They’re right at the start of the cancer pathway.

The tests have started.

The waiting has begun.

The questions have arrived.

And there are far more questions than answers.

It took me straight back to those first weeks when I wanted someone—anyone—to explain what was happening.

Would the tablets work?

What happens next?

When will someone actually tell me?

Why does everything seem to take so long?

I remember those feelings so clearly.

So I found myself saying something very simple.

“You are special.”

I meant every word.

Not special because of illness.

Special because there has never been another person quite like you.

Which means your treatment shouldn’t be exactly like anyone else’s either.

Your doctors aren’t making a plan.

They’re making your plan.

That takes time.

Scans have to be reported.

Blood tests checked.

Specialists meet together.

Opinions are shared.

Every piece of information helps build the picture.

It can feel like nothing is happening.

In truth, an awful lot is happening behind the scenes.

I remember waiting for that first proper face-to-face appointment.

I wondered whether the next phone call would tell me everything.

It didn’t.

The important conversations happened later, when all the information had been gathered.

Looking back now, that made perfect sense.

At the time it was unbelievably frustrating.

Waiting is one of the hardest parts of this whole business.

If I could offer one piece of advice to anyone standing where my friend is standing today, it would be this.

Take someone with you.

Take a notebook.

Write your questions down before you go.

Don’t be frightened to ask for something to be explained again.

It’s your appointment.

Your treatment.

Your future.

Go at your own pace.

Remember…

You are special.

There is nobody else quite like you.

That’s why your care is personal.

That’s why it takes time.

That’s why your plan is built around you.

I hope my friend knows that, even while they’re waiting.

I hope they know they have people standing quietly behind them, cheering them on before treatment has even begun.

Nobody should ever feel alone at the start of this journey.

We all begin somewhere.

Those of us a little further along the road can always leave a light on for the next person.

Perhaps that’s one of the most important things we can do.

Good night.

Take care.

Don’t turn off your light.

Madiso
  • Wishing your friend strength and hope and a treatment plan in place soon. Very wise words Mr U, full of empathy and understanding. We all agree whole heartedly with you.  

  • And, that's why I am a Community Champion. I got my cancer diagnosis (surely other people get cancer - why me?)  Yes my team went through everything, Yes Lorraine (Mrs Millibob) is a nurse - but there's more to a cancer diagnosis - it's personal and it's your diagnosis. 

    It was my nurse giving me my first Hormone Injection who mentioned the Community - I didn't join at first, just "ghosted" through - then thought - why not - and introduced myself. Lot's of friendly advice, (Yes some of those who first replied are still on "our" group) but explanations of how the treatment works, why I was feeling like I was and how to combat the side effects - brilliant.

    I soon started replying to others and being a bit of a nerd Nerd kept adding to my knowledge of "our" cancer. and yes almost 3 years ago  - did some training (which is ongoing - thank you Macmillan) and here I am.

    the NHS is good - but they process people and don't have the time to go through everything, treatment, side effects etc and that's where personal experience comes in - and I don't want anyone to be where I was at the start of my journey - in the dark

    SO Mr U - your statement is so true

    "Those of us further along the road can always leave a linght on for the next person".

    Well said that man.

    Kind regards - Brian.

  • It’s also true that as the person with cancer, only you know what are the most important things to you and therefore need to advocate for yourself. Like your own decision to keep doing another block of surveillance rather systemic treatment. All the best to you and your friend. Plus I hope Mrs U’s calf recovers soon. 

  • So true and wise.The waiting is always tough and you have to find distractions.So much work is going on behind the scenes when you are waiting for surgery.It must be a logistical nightmare gathering a large team together.I took my sister to appointments plus a notebook an extra pair of ears is so helpful.My very best wishes to your friend.Love Jane xx

  • I was helped so much by this community before and especially after surgery.The recovery period was so depressing as I was alone during the pandemic.That was nearly 7 years ago and I’ve stayed to offer support and advice to others facing the same operation.Love Jane xx