Hi there everyone, well its day 3 post op feeling a tad better but bloody sore, didnt think it would be this bad, its like a major bout of tonsiltis all over again, well i have all my treatment planned got my letter start radio therapy (30 sessions) and chemo (6 sessions once a week for a 6 hour stint!!!) First i have to have a feed peg fitted to my tummy they say i wont be able to eat normally once this treatment kicks in !!!!!! Mindst you i ve been eating with this tonsilectomy LOL This all starts on 25th August but first i have to go into hospital to have a head shield made, this takes place over three days next thursday, friday and following monday!!!!!
If anyone out there can tell me a little of what to expect with this tonsil radiotherapy, this is the primary site, the secondaries were in my lymph node in the neck so it will all be blasted on the left side!!!!!
My Oncologist was lovely and apparently one of the best in the country James Cook Middlesbrough, got to give it a plug LOL!!!
Well thats the update for now i l keep you informed of the next step with the head shield making, god thats gonna be messy, think they want me to have my hair cut but im sticking that one out at the mo, surely we can have some control over things, it will probs get damaged with the radio anyway, the roots at the back will and wont grow back they ve told me that already so am gonna hang on as long as i can, i need something to cling onto !!!!!!!
Love to you all
Jill
x
FormerMember
Hi Jill
Pleased to hear that the op is done and dusted and the next part of your treatment begins. I am seeing the oncologist next Friday to find out what chemo I'll be starting. You seem very positive and ready for the fight, good for you! Are you feeling nervous like I am? I just hope that the cocktail of drugs will blast the naughty bl***y cancer cells away for good. They weren't invited in the first place!!
I had cancer of the larynx (which spread to two lymph nodes, one each side of my neck) and had chemo and radiotherapy. I had a feeding tube put in my stomach because they told me I wouldn't be able to swallow because my throat would be too sore, but I managed to swallow the whole way through and never used it lol.
Make sure you apply loads of aqueous cream to your next because it might get burnt from the radiotherapy, erm...I'm trying to think of other tips lol. I have a blog that I wrote in while I was having treatment so if you fancy a read then go on my profile on here and it's linked on there.
If I think of anything else, I'll come back and let you know lol.
They always seem to put feeding tubes in patients that are having RT to the Head & Neck area, lots don't need it like Hayley, but don't worry too much if you do. My hubby uses one all the time as he has no tongue. Like Hayley said use plent of aqueous cream and if they give you exercises using tongue depressors for keeping your mouth open do them. Also use plastic cutlery if you have problems with metallic taste. Also stock up on unscented soap.
Thanks Angela for the email, yes im nervous but also just want to get it all started, this tonsilectomy has been worse than i thought my throat is disgusting, and its hard to swallow but they do say adults are affected worse than kids so hey ho! I start on the 25th with treatment so we l have to keep each other posted!
Thank you hayley you made me smile, nothing rarely puts me off my food either, i can do with as much knowledge as poss at the mo thank you darling, keep in touch, how are you tho these days?
