Hello, my husband has a glioblastoma . I am finding it harder to cope than at diagnosis. Feel physically ill and feel guilty for not being strong enough. How do i find the strength? Don't know that to do. Any suggestions? xx
FormerMember
So many of us "carers" are treading the same path.
One of my worst fears has always been that will not have the physical or mental strength to support G as his cancer progresses.
Since his terminal diagnosis, I have been through so many emotions, sorrow, anger, frustration, helplessness; you name it, I have been there.
The only advice I can offer is to take one day at a time. Of course, I worry about the future, and losing G, but I try to tell myself that worrying only robs me of the energy I need to support G, and will in no way change what I know is inevitable.
It took me many months to come to terms with G’s terminal diagnosis. Thankfully, we have been given a precious two years since then when he was well enough to lead a near normal life between treatments.
If you read posts from other carers, you will see that somehow we do manage to find the strength to deal with whatever is thrown at us.
Daffie, Sorry to hear about about the terminal diagnosis but pleased to see that you have had valuable time together.
Encouraging to hear that I´m not alone to have all the feelings I have. Sometimes I think I worry more than my partner who has bladdercancer. He tends to take the day as it come. I have spells of crying feeling totally lost. I´m off sick after a nervous breakdown and now as I´m not working I feel I´m coping better.I do worry a lot about the chemo he´s soon starting and I´m trying not to show. Don´t know if it´s the best thing to do but that´s my way at the moment.
You're not alone in this, I feel exactly the same way.
When dad was first diagnosed with stage iv GBM last month I went on autopilot and was very capable and efficient. However, in the last few days it's hit me like an express train that I'm going to lose him. I feel like I'm not being strong enough for him and while I'm with my children I'm there but not really there if you know what I mean. When the time comes I think I'll find the strength to be there for him and I'm sure you will be the same. Keep going and take care.
Thank you all for your kind thoughts. I really appreciate them. I am trying to be strong and enjoy the time we have but it is so hard to see him getting weaker. I've had a bad few days and i'm sure i will feel a little better soon.
