Meeting the oncology team tomorrow

1 minute read time.

Back in November I was recalled from my first ever mammogram, a few months short of my 50th birthday.  I had no inkling anything was amiss until that point but got my diagnosis the same day (on my own - the first day of Lockdown 2).  The staff at the specialist breast centre couldn’t have been kinder and they set the tone for the months ahead.

On Christmas Eve I had a wire-guided wide local excision (lumpectomy) and sentinel node biopsy, followed by a re- excision at the end of January.  The lesion taken out was 33mm x 15mm and there was spread into one lymph node.  The cancer was ER+ and PR+

Having initially thought that surgery and radiotherapy would be sufficient the news that chemotherapy is needed has been difficult to adjust to. Suddenly treatment has become much more long-term and there are more decisions to be made about what might be reasonable in terms of managing work over the months ahead etc.

That said, I’ve yet to shed any tears.  If I’m honest I guess I’m still slightly numb from the events of the last three months and have gone into practical, researching & list- writing mode/trying to keep things cheery at home/continuing to work as much as possible - there will probably be a flood of tears when the Adrenalin recedes...

To anyone about to have a lumpectomy I’d say please try not to worry! It was much easier to manage than I thought it was going to be (apart from excessive sickness the first time, which meant I had to stay in overnight until Christmas Day!) and the exercises really are worth persevering with.  My recovery from the second surgery was so speedy I had to get my fit note rescinded so I could get back to work much sooner than planned.

For me I’m now just waiting to meet the oncologist tomorrow and then I’m venturing to the wig shop on Thursday - not words I ever thought I’d be writing!  I’m still uncertain about whether or not to try scalp-cooling but am coming down on the side of giving it a go.

Anonymous
  • Thank you - that sounds really encouraging. I’ve now got my start date for chemo.

  • Good luck with the remainder of your treatment, Kb_3

  • Hi I have also had a Lumpectomy and Breast Conserving surgery in early January, after being diagnosed with High Grade DCIS in November  2020. I too was prepared for the radiotherapy treatment afterwards and was feeling lucky it had not become invasive. Then when I went back for my results 3 weeks later I was given the devastating news that the overall DCIS was double the size they originally thought and 95mm of it was also invasive. I did cry as it was just something I didn't expect. Last week I was also told that my cancer is HER2 positive meaning I now have to have Chemo and targeted Therapy before I have my Mastectomy which was booked for this Wednesday. I am still going in to have a Sentinel Lymph Node Biopsy to make sure the cancer has not spread to my Lymph Nodes and they want me to have a CT scan over the next two weeks as a precautionary measure because my first Cancer didn't show up until the whole thing was biopsied. The Mammogram, ultra sound, MRI and the 5 Biopsies I had only picked up the DCIS. My one fear was also having Chemo but I am beginning to get my head around it, I have heard about the cold cap and I might give it a try if it is offered. I have been referred to the Oncologist but will have to wait 4 to 6 weeks before treatment can start due to them needing to take the Lymph Node Biopsy. 

  • Sorry did not mean to press submit before I said that I hope your treatment goes well and you remain strong, but also do not feel bad if for a few days you don't want to be strong. Sending Positive thoughts your way.  

  • That’s an awful lot for you to take in! The further into this whole new world of being a patient I’m getting I’m finding that these unexpected twists and turns are part of the ‘journey.’ The waiting (for appointments/results/next steps) is exhausting - lots of people have encouraged me to just think about the next step, a bit at a time, but I’ve not yet mastered this! Chemo starts for me next week... Good luck with your treatment.