How long is a piece of string? As long as a shifting goalpost...

12 minute read time.

Well, I thought I ought to do a blog to update things as last we left it; I was waiting to do a fart, or poo or some such in hospital. That was 4 weeks ago, and I have been known to write 4 pages on an afternoon’s worth of stuff so, settle down with a drink and cake or just skip to the end and say ooh ahh mmm x. especially if you read warped etc, you’ll know most of this already, but I wanted to record it for me over here really.

I dutifully farted and after pacing the ward and eating an obscene amount of grapes and drinking a ridiculous amount of water, I finally did the ‘news’ the consultant was waiting for and the presentation of a poo  allowed me to go home on my Boot Camp early release programme…

Oh if only I could get my own way more often by doing a poo….. sigh.

 GC had said I am not sure it will work and his sidekick FC had said the same, along with the funny (not) phrase of ‘use it or lose it’ but SC (surgeon consultant) thought it was worth a go and he would do a bit of bum ballooning whilst I was out for the count (Oh thank you for small mercies) and leave me with a hole to heal up and said ‘I will be interested to see what happens’ (as in whether you shit yourself or not kind of interested… bloody weirdo, can’t he have normal interests like football or fishing or something?)

GC says oooh you are doing well with your energy etc the week before the op, we are going to set you back a couple of weeks now of course…

A couple of weeks? Ooh that’s ok….

 SC says  6 weeks to heal, you should be fine to go back to work after 5 (end of Easter holidays)

Bit of a goalpost move of 2 weeks but ok, that’s the holidays, ok…

I was sent home with Boot camp leaflets saying 2-4 weeks back to work, swimming, jogging etc. I ignore the fact that they are generic surgery leaflets and for those with stitches etc…  plus another one that says wait 6 weeks before lifting anything.

Ooh 2-4 weeks great! I’ve got a week in hand thinks LM Might get some swims in before school starts.

Lovely Mandy the bum nurse (she has a special title but I can’t remember what it is, but she’s been my support nurse all along) says take it easy and no doing anything ok and no lifting etc etc blah blah blah… la la laaaah

What? Oh yeah, Mandy… I’ll be good, a couple of weeks will be nice doing nothing.

That first week was a case of ouch ouch and owwwww.  District nurses coming round every day to pack the hole with ribbon stuff and boredom.

Second week, more of the same, a bit less ouchy and more boredom.

Third week the same less ouchy more boredomy.

I get the nurse who came the second day and she says ‘Oh you have not healed at all yet.

 What???? 3 weeks in, I should be done by now!!!

Looks good though, don’t worry. Take it easy. Oh I’m going to go to the surgery next week for my dressing changes says LM, get me out of the house etc. Ooooh don’t overdo it she says. We can come round if you are tired.

 But I need to get going cos I am off to work the week afterwards says LM.

Nurse falls on the floor, picks herself up and says you are in this for the long haul… you are going nowhere while it is healing and it hasn’t even started yet. Rest and do nothing. Get a fit note.

Hey! Who moved the goalposts?? Hmmm maybe this is going to be bigger than I thought….

I see the nurse at the surgery who can sort out fit notes for the GP. I like her, she’s funny and kind of ‘gets’ me. I ask her about fit notes and back to work and she starts laughing and says No way!!!!

Roughly how long are we talking says LM?

How long is a piece of string… says Nurse.

Could take months, but once it starts to heal it does so pretty quick. I tell her I joined a gym to get fit for the op and before I’ve finished the sentence she is crying with laughter and saying Oh we are going to have to watch you!

She writes on my notes something about me being mad enough to want to go back to work and no way am I going anywhere with an open wound.

Months??? But but but…. who moved the goalposts? Noone ever said months!!

I am getting married and taking my class to Sweden and I have lessons that I have put off till now while phasing in and if I don’t do them now, then…..

and am I meant to nip out in the middle of my wedding to go and get my dressing changed? Can you imagine it? Me sat in my dress in the surgery waiting for my turn and then back out the reception? Haha.

So, I throw a wobbly in the Room, get cross that everyone tells me to be patient cos I know I have to be patient, that’s not the point  and then eventually calm down cos I always do in the end and start to get my head round things and reconcile myself to losing part of my job (I am head of 2 depts and have not really run either all year due to phasing back in and now this op etc and only so long they will pay me to not do a job when they are making cut backs here there and everywhere’) and I start to get my head round it and I can wait a while for a swim etc.

Then a few days later, the nice nurse says Oh that’s started healing now…. Should heal in about 10 days or  couple of weeks.

Hoorah! says LM, and promptly forgets everything she has just reconciled and calculates, that’s only a week off at the most from the start of term and back to trips and weddings etc…

Nice nurse plays with my stitch showing me if she pulls it, she can close the hole (purse string type one running round the edge of the circle) Don’t let the other nurses cut it she says, as it’s still attached. Weird but interesting.

I get to leave it a couple of days as it’s so delicate the new growth, she doesn’t want to disturb it. Of course when it comes to the next dressing change, it’s a bit crusty and scabby and scary nurse pulls the stitch out with the crusty bits.

 Oh there’s the stitch says LM

Oh? Is it? She says peering at it…. Ooooh, Hmmmmm. Ahhh Hmmmm. Says scary nurse.

(She jokes with you about crap she is and that she has no confidence in her dressings etc. She locks the door when you are in there and she has to look at stuff really really close with a light and it makes me giggle or terrified, sometimes both)

After lots of umming and ahhing and worrying from her, she packs me and slaps a dressing on and says here’s a spare dressing in case that one falls off and I’ll consult my colleagues about the stitch and we’ll see what to do on Monday…. Oh and I am not even going to talk to you about work or doing anything for a fortnight. I see on your notes it says you are mad enough to think you can do stuff…

Hoorah, fortnight is ok. I can do a fortnight and maybe I’ll be better before then….

So, after a weekend of utter utter boredom beyond belief…. (I have SO much I could do, I don’t really get bored normally, but all the things I am desperate to do I can’t… the garden, decorating the house, crafts, etc etc all involve moving and lifting etc and driving to places to get stuff etc) You see I am starting to feel ok, except for the hole in the belly. I feel well actually. I was just starting to feel well before the op and was enjoying going swimming again and doing things, just normal things but things all the same and at the moment, I can sit or lie down and play on the computer and read and can’t drive. I can just walk into town if I have a rest before I come back. That’s about it. Boring!

I go back today. Fearful of being locked in a room with scary nurse staring at my belly at point blank range with the interrogation lamp on and maybe needing that stitch redoing…

Slight interlude here… GC and FC have both hesitated about examining me and suggested doing it under anaesthetic so as not to hurt me. Oh get on with it says LM and ignore the screams. I don’t seem to react to local anaesthetics so have winced and howled through various things, picc lines put in etc and wounds packed with no pain relief etc and I am ok. I am a ‘tough girl’ and can do pain etc but The mere mention of stitches, never mind one that runs under your skin in a circle round a hole and I am a terrified wussy baby!!!!)

Ok, have a breather and a cup of tea or a slug of brandy… are you sitting comfortably? I’ll continue…

There is only me and a man in the waiting room for the nurse. He is sat with his eyes shut. He suddenly opens them and starts singing. I jump out of my skin! Then he gets louder and he’s really crap and out of tune and I can’t even make out the song, but it’s very embarrassing and slightly scary.

So she pokes around and says I might need to get a colleague…

What for??? So you can doubly poke at me?? Two pronged attack? One from each side??

And she pokes and prods and says she thinks its ok as it is and it’s looking good etc and packs it up and slaps another dressing on.

Phew, no stitches!! No double sided attacks!!

How’s the pain? She asks… Oh much better says me breathing again. If I don’t move, I can’t feel it now most of the time. It only really hurts when I move.

Well, you know what to do then don’t you…? She says

All together now…

Don’t move.

Very droll. Says LM.

Can we talk work and how long realistically says LM cos they are starting back on Wednesday and I’d like to let them know. She scowls at me.

A week? Couple of weeks? I hesitate?

Let’s just say you would be lucky to go back before another month. You need to heal up.

Eeeeeek! You moved the goal posts again….

She laughs and said ‘most people would be delighted to get another month off work’ Well, can you find one of them and swap places with me please says LM….

So I am fed up with the goal posts moving. I know you all say rest and recuperate and all that and yes, I know it all, but it’s the’ this and then that and then this again’ that does my head in. If they had said 3 months or whatever, I would have got my head round it and been ok about it. This is taking longer than my treatment at this rate  and it was an elective operation and had I known it would take months to recover from it I might have thought twice about it.

But, looking on the bright side, I have a bum back. It hurts and bleeds and leaks a bit, but its my bum and its working better than we thought it would so far and my poos are endlessly fascinating at the moment (which is a good job, cos there are lots of them!) and… lots of friends are taking me out for coffee and if I lose some of my job, then so be it….. the only bit I am really  fed up about is that I am the only one who can teach my subject and I do a once a year block with the younger class. Some of them have been asking me all year when am I going to do chemistry with them… and it’s that block I am going to miss and they have been looking forward to it for over a year now and I feel crap for letting them down and them not getting it. Oh sorry, that wasn’t bright side.. back to positive….

Oh, on the way home, I was a bit harumphy so I looked in the gallery. They had some beautiful jewellery in there and I think I have found my wedding ring. :) (well, the design to get one made)

It is oxidised silver with little blobs of gold on it. The silver is grey like lead but shiny and she said that it wears off over time and becomes shiny silver so you have to get it re-oxidised. I rather love the idea of having a dull ring that becomes shiny over time. Normally things tarnish and dull with age and I like that symbolism of something becoming more shining with age rather than dull. We have been together 21 years and it took cancer to make us shine again so I think I have found the design.

Oh, and I know I said I wanted to live long enough to see grey hairs, but finding a grey hair this morning is cheating!!!!

Enough prattling on. I am ok, I am healing slower than I wanted but I am healing and that is good. No point in fussing about futures cos let’s face it, I have a bone scan beginning of May, a CT on my lungs and liver and an MRI on my pelvis end of May and then check up with GC 9th June, so who knows…. This going back to work and trips and holidays might be academic anyway…. Of course I am hoping/assuming for good news in June, but there are no guarantees as we all know.

 So I bought some seeds on my way home and will sprinkle them in the garden and watch them grow.

Bernard St Bernard has an extra big barrel of Brandy to revive you. Look out for him stomping up and down.

Little My x

 

 

 

Anonymous
  • FormerMember
    FormerMember

    Julia, WOW! That is impressive! I can't do much more than that haha. the kids don't really learn stuff like that anymore and they are gobsmacked when i reel off the first 20 of the table to them. Trouble is, Chemistry is only fun if you are doing experiments and blowing stuff up, so we would need a shed lab if I was to teach you haha.

    Drew, what can I say? you are right, bums are just funny. Good job eh? Cos it would be bloody miserable otherwise...

    Clairdeloony, you can borrow my office if you want, its got a camp bed in it and windows!! its feeling a bit lonely at the moment.... Thanks for the tea party thing. Sounds lovely.

    P's ideal wedding would be to go down the registry office, sign the book and come home! actually, he has conceeded that a bit of a celebration would be nice, but he is really anitsocial and doesn't like crowds and parties and people really... he loves cats of course, so it has to be a balance of celebration but not too much... he's annoying in that he keeps saying are we going to get married or what? but when I say do you want this or that? He just says oh I don't know I'll think about it.... So, I am trying to come up with ideas that would suit... Not doing very well cos there is sooooo much choice in a way. The hardest thing will be a dress I reckon. I am not wearing a normal wedding dress, but don't really know what to wear... except for in the foot dept haha.

    How can you be pruductive with no windows? Its wrong. (I'm an outdoor girl) I used to grow all my own veg and had an allotment and a polytunnel and grew melons and all sorts of lovely things... That was when Max was tiny and I didn't work and we spent out days at the allotment.... Not had time for years since I started teaching and my last garden was huge and wild and part wood and too much to cope with, plus despite the leaflets of everyone pruning roses, cancer does kind of stop you wielding a lawnmower and that... (well, mine did) so now I have moved and got a little tiny garden, I am looking forward to growing some flowers :)

    My birthday is Shakespeare's birthday and St George's day... I ought to be fully English eh?

    enough rambling....

    Hugs all round

    xxx

  • FormerMember
    FormerMember

    Yes please I will borrow your office! My brother emailed me last night describing his office in Prague, its on the top floor of an old building with lots of windows and looking over the city sooo jealous!

    When P says he'll go away and have a think does he ever come back to you with an opinion? If he's anything like Tom, he might just let you get on with it? Are there people that he will want invited that might make him be a little bit less antisocial? Hmm wedding dresses is difficult... I hated wedding dress shopping, they are all poofy and white and horrible! I finally found one on the sale racks and wasn't at all what I thought it would be, a sort of very very light gold colour with a lace up back, but the thing is, its your day so you can wear what you want. Doens't have to be a dress? Maybe a skirt and top? My friend Hazel had a dress maker do her dress and it didn't cost very much...

    I'm not sure how they expect us to be productive with no windows.... its used to be an old comms room, so had servers and stuff in it, and didn't need any windows. I don't like it up here at all, gona work from home tomorrow, in the conservatory so an abundance of windows!  Aw that sounds lovely, I would love to be able to grow stuff, things just tend to wilt away around us! Although actually we did buy two plants when we were trying to sell our old house - from Ikea - and they are still alive! Not that we can eat them hahaha

    oooh is that on Monday??

    Keep rambling LM!!!!

    C xxx

  • FormerMember
    FormerMember

    LM How on earth have I missed your blog, so sorry my dear (tips hat and kirtsies towards LM).

    You have been and are going through an ordeal but one that has positives too and you understand and appreciate that don't you?  You are indeed a very wise LM.  On that note I shall comment on those positives and it was quite lovely to read how cancer re kindled an already sound relationship but just prompted that final commitment of marraige.  It has brought a nice tear to my eyes.  And the ring sounds absolutely perfect, you've found a treasure there just lke you.

    Much love and take care

    Jan xxxxxxxxxxxxx