Tamoxifen has been fine

1 minute read time.

When I was going through treatment for early stage breast cancer last year I was so worried about the effects of tamoxifen. I'm 55 and had had to stop HRT when I found out I had breast cancer. I had 2 surgeries and partial radiotherapy. Tamoxifen felt like the hardest part. I was fortunate to have amazing care from the Park Centre team in Brighton. My oncologist really listened to my worries but also really helped me reframe my thoughts. Everything I had read online was so negative. I thought life would be unbearable. I was planning on not taking it. He reminded me cancer was the enemy, not tamoxifen. Tamoxifen was my friend. 

A year on and I feel really well!  Today I completed the London to Brighton bike ride for Macmillan. I feel so grateful that I feel so well. Please don't let this post detract from the very real suffering a cancer diagnosis and treatment brings. However, I promised my wonderful oncologist I would write something positive about tamoxifen if it worked out. "It's a bit like Trip Advisor," he said. "Nobody bothers to leave a positive review'.

I've been on tamoxifen for a year now and I'm fitter than I've ever been. I find exercise hugely helpful in keeping symptoms at bay. I've changed my diet to be healthier and rarely drink alcohol. As soon as I had my diagnosis I had acupuncture and I've found that really helpful. 

If you're feeling very anxious about taking tamoxifen it may be like me, the reality is different. 

All the best. 

Anonymous
  • I came back on the forum to write a positive thread about cold caps because all I read was doom and gloom, and found your post first! It's been a beacon to read. I've been on tamoxifen and Zoladex for 3 months now and whilst I am getting symptoms, I'm using exercise, a healthier diet, no drinking and going to bed early and I think it's all been helping. 
    I love the Trip Advisor comment, and the one about cancer being the enemy, not Tamoxifen. It helps keep things in perspective as I move towards more prescribed meds (Zoladronic acid infusions next).
    I wish you well with your journey, Sparky Cat! I'm playing tons of tennis having rekindled an interest in it and finding it hits both the need to stay fit and it's also a nice way to catch up with folk socially.
    I wanted to ask about acupuncture - is it ok to have it if you've had lymph nodes removed?

  • *(I'd love to hear more about acupuncture and what your experience was of it, if possible please)

  • I started acupuncture when I was first diagnosed and had to stop HRT. I find it really helpful with my sleep, hot flashes and general wellbeing. I checked with my consultant about acupuncture and no concerns were raised. It is offered by Macmillan as part of their service to cancer patients but I have treatment privately. I'm sure they would be mindful of your arm and any risk. I had just a sentinel node biopsy but was still told to be careful. Hope this helps.

  • That's ever so helpful - thank you! I also can't have HRT so could do with something that helps with sleep etc. How often do you have it if you don't mind me asking?