Hi There, My name is Samantha im 23 and i have a condition called aggressive fibromatosis, the best desciption i have for this is a soft tissue non malignant-malignat tummor that is very localy agressive and recurring,an mine is rather infaltrive..but they do not metastasize like malignant cancers, but mine seams to send fealers or tubers out... it curntly takes up at larg part of my chest cavity, starting at the top of my ribs moving down between my ribs to my inner chest wall where it is so larg its squashing my left long and moved my heart to the right (its started growing round the side and front of my heart as well) i have had this before in my breast tissue where it was removed with no radio or chemo. now this one has been treated with tamoxifen and sulindac for 5 /6 months and that has had no effect at all.. i start caelyx tommrow, tho i dont know if i can face it, how are you suposed to handle this stuff.. ya know.. i wanted kids.. not a life sentance
