hi all. my partner was dx 2 weeks ago with advanced bowel cancer with secondary liver, we have been told it is inoperable but treatable and we are awaiting an appointment to see oncologist with regard to palliative chemo and radio.
we have applied for disability allowance and our mac nurse has told us to apply under the special rules ie not expected to live more than 6 months!!
this has really upset me as no one has mentioned the t word and even our consultant has said he didnt want to go down that road!
mac nurse has said not to panic it is just pamphlet speak and if he didnt have any treatment then his cancer would progress and yes he probably wouldnt live longer than 6 months-which i can see her point.
has anyone else had this said to them, apparently it is for our own benefit and an incureable illness is classed as a terminal one?
just a bit upsetting to hear someone say that, any advise or comments would be welcome, many thanks.
FormerMember
I am in the exact same situation luv and I have no intention of dying just yet. As the Mac nurse said it is simply pamphlet speak how can anyone tell you how long you have, it is not possible. I am getting dla under special rules and I intend to be around for a while to come yet. I am not undergoing any treatment owing to heart problems and other problems I have so I try to get as much out of life as possible.
