PLEASE Please i need help now!!! Miracle or not??

Hi Guys thanks for all of your best wishes,

Appointment took place at 5.30pm as consultant was running 2 1/2 hrs late . Not really too much info to be honest they are not sure which cancer he has. Apparently his afp is a little to high for lung cancer but way too low for germ cell. but it is definitely one or the other.

They are starting him on a new cycle of chemo but different to the original one as apparently now his stay in hospital was caused by an allergic reaction to the cisplaitin. So he is going to be given this other stuff that apparently would be used as a second choice to treat both lung and germ cell cancer. and hopefully after the first cycle he will have another ct scan and they should  be able to tell what type of cancer he has by the way the tumours react to the chemo .He did say however we may never know what type it is , we may just have to treat is as best we can and give dad as much time and life as possible.

Are you confused yet???

I know i am!!!

dad has been admitted again tonight - he has been being sick, diarrhoea and loosing alot of blood (anally) not sure whats happening or what this means. he is still on the EAU.

Vicki

As you may know my hubby has had testicular teratoma (germ cell) for the last 15 yrs, on some occasions he has had tumours yet on others it is just his AFP - alpha feta protein. As I understand it AFP in men should be under 7 (some hospitals use different scales but it should never be over 15 dependant on the scale used). AFP is a protein that pregnant women have and that is why in men it is known as germ cell tumours. There is a couple of other reasons why there would be a raised AFP - one is a man that uses cannabis and the other is to do with the liver. When they do an AFP test for germ cell cancer they also carry out other bloods such as HCG.

When my hubby was first diagnosed he had an AFP over 6000 and several large tumours, the next time round his AFP only raised to 62 but he also had tumours, it was the same the next time round and on this occasion the tumours had invaded his liver as well but since then his AFP has risen another three times with no sign of tumour growth but as his docs have explained many times germ cells in the blood can be so small that they will not show on any type of scan but given that hubbys AFP steadly rises then he is treated with chemo as a relapsed patient. He is still here after 15 years and he has also had papillary carcinoma of the thyroid (totally unrelated) and last week after many many cycles of various chemo regimes his AFP had gone back into the normal range for men.

When you or your dad see his consultant have a list of questions written down so that you do not forget/get to upset to ask and if there is anything you do not understand then tell the doc. With a bit of luck it will be a germ cell cancer as they are very curable in the first instance and if my hubby is anything to go off then it is managable after many relapses. Good luck hun and I have accepted your request so if you need any thing just shout. xxxx

Ray