PLEASE Please i need help now!!! Miracle or not??

1 minute read time.

IS THIS A MIRACLE OR ARE THEY WRONG AGAIN!!

If anyone has read my previous posts you may know why i need your help.

In dec 09 dad has a biopsy on a tumor in his armpit. Doc told us then he was 99'/. sure it was lymphatic cancer and was easily treated. 

Then

On xmas eve dad was diagnosed with stage 4 lung cancer and was given weeks to live. 6-12 months with chemo. We have been completely heartbroken.

We then found out the primary was in his windpipe with secondaries on both lungs and also a huge tumor in his armpit which has been his only symptom.

anyway his chemo started on thurs 14th and he was given a massive dose that lasted nearly 12 hours.

He was admitted to hospital on sunday 17th and is still there now.

he was there because he was bringing up blood and could not physically eat or drink anything he could not swallow.

Today he woke up feeling well and ate breakfast

At 3pm today his consultant came to see him and said "i'm so sorry mr ........ but there is a possibility that i may have got your diagnosis wrong" WHAT?????????

He said he has now (4 weeks later) sought a 2nd opinion and now believes he has 'germ cell cancer' which is curable.  

WHAT??????????

Dad told us all tonight and he is obviously delighted but we were all in shock and also angry very very angry that we and dad (who had accepted his fate) have been put through this.

I have now come home and researched this and it all leads back to testicular cancer and mainly in children.

Nothing i have read tonight though gives the indication that this is what dad may have. He has tumors on his lungs, windpipe and armpit. He has nothing 'downthere' what so ever and nothing has shown in the scans etc i just don't get how ther have come to this conclusion.

We are all in shock and want to believe there is hope but how can we when it seems so far fetched.

Please help me.....i need some answers. xxxxx

 

Anonymous
  • FormerMember
    FormerMember

    They have gone back a little today and said that the raised AFP levels can also be a sign of the tumor growing not shrinking after chemo aswell as germ cell so now we really dont know!!!

    We are so confused and are seeing a new specialist on monday.

    It seems like no-one knows what they are doing!!!!

  • FormerMember
    FormerMember

    Hi Pinkvicki,

    I dont want to say to much in case Im barred from the site for my language. But if I was you I would Take Lucylees advice go for a second opinion.

    Good Luck. Sarsfield.xx

  • FormerMember
    FormerMember

    dad needs a scan me thinks.....at a different hospital and with a different specialist and he needs at now so he knows whats wong with him and not what it might be.

    and docs need a kick up the ferking arse...

  • FormerMember
    FormerMember

    Thanks Graeme,

    Thats exactly what i think too, Apparently what is causing the confusion is the slight rise in afp levels. but i have read so many different things on the net where they say that rarely the afp levels will rise in lung cancer.

    I really don't understand it all. I have read lots but it is all just jargon. xxx

  • FormerMember
    FormerMember

    pink vicki.....reading stuff on the internet is not a good idea because theres so much garbage , and often you can scare yourself crazy if you read something that might not apply to your dads case.....i once looked up to see what having a big swollen leg meant for me , with me having non hodgkins lymphoma....the first thing i read was it meant i was near the end !!!!!   eeeeeek !    mac nurse told me that was rubbish....and steroids soon got my leg back to normal size..... has your dad got a mac nurse ?  he / she could get you answers to whats going on....i think if i was you and your dad i would turn up at your local hospital and go to the cancer clinic / chemo unit and talk to who ever is in charge....phone up your mac nurse or find the number of your local hospice and ask them for advice im sure someone will find out whats going on....or failing that id just go to the hospital. to were ever the comsultants are...knock on his / her door and walk in. post what happens .....and remember dont scare yourself crazy looking up stuff all over the net....

    good luck....