My first blog

Hi I have Aggressive Fibromatosis which is not actually a Cancer. I do feel a bit awkward joining this community due to the fact that i don't have Cancer, i have benign tumours which attack the muscles and tissues in my left leg. I am told though that just because they do not metastasise does not mean that they are easier to deal with, as they are very difficult to control, there is no cure and they behave like cancer. I was diagnosed with this in February 1995 - aged 14. Since then i have had 5 operations to debulk the tumours had Chemotherapy - Methotrexate and Vinblastine, Radiotherapy twice and Tamoxifene. I am now 28 and in December 2008 i found out that i have a tumour in my calf and one in my pelvis so will shortly be starting a 6 month course of Caelyx. It was quite a shock when the doctors confirmed that there were 2 tumours as it had been 7 years or so. Not so much about the one in my leg as i knew that after the last operation in 2001 they were unable to completely remove the tumours, which is why i'd been given radiotherapy, but as for the one in my pelvis - i was not prepared for that news. I think it's fair to say that i was devastated, for a few weeks i was in quite a state, which is highly unlike me. I had always been so strong, just took it on the chin and got on with it, but at 28 i have responsibilities - mortgage, job, a dog etc so it makes the next step much more difficult for me to take. Hopefully, the Caelyx won't be too bad and i'll be able to continue functioning as i have been!