Endometriam Cancer Grade 111C; coping with low survival rate info

1 minute read time.

Wondering how women with Papillary Serous Adencarcinoma with clear cells Grade 111C cope with the poor survival rate they read about when they look it up on the internet?  At the moment it seems there's a 33% chance of survival for us.  Is this your reading? Has it improved? Would like to know more!

I tend to not automatically believe I will be the lucky 1 in 3.  What kind  of presumtious thinking is this:

"Oh of course it's going to be me. I'm so special, so strong, I know how to do this!"  

Fundementally, I don't see why it should necessarily be me, though it could be, of course.  I have told myself that I preferred to try to be realistic and say

"this could be a very long haul and so you would be better to organize your life to be as well as you can, emotionally." 

In those dark days of chemo, post op, I spoke to my new female God, I meditated and flushed out my cancer cells, I found all sorts of internal strengths to feel good about. I worked on dealing with my cancer the best I could,;so if there was a chance of being the 1 in 3, it might just be me

But gradually, through feeling ill for so many months (now I'm on 55th Radio Therapy treatment), I've stopped meditating, stopped vizualizing, stopped delighting in my female god and I've become maudlin.

Until today.  I went to have a head massage and a facial.  I felt good, less mentally tired, prettier, alive, less DIZZY!!!    I enjoyed my lunch, which I don't usually enjoy.

I read the Budwig Protocal,which is helpful, especially the spiritual aspect of it (havent dared tried the diet since I have a nuttritionalist).

Some friends are coming round for a short visit in a few hours. I have wonderful family and friends.I don't know more than this.

The future bothers me.  I can have dreams I enjoy, (for example my youngest son is going to have a baby. I'm going to visit my mother in California and see friends in LA).  Then I experience deep secret  fears which are like bad dreams (mostly financial).  I would appreciate sharing experiences with someone, or others who are also dealing with this roller coaster ride. 

 

Anonymous
  • FormerMember
    FormerMember

    Hi Lorraine!

    Atia still in her Mum's tum!!

    All the best with all the goodbyes and the dashing around.   You'll miss the US of A won't you?

    You're fantastic - working again!

    Looking forward to hearing all the news again when you next get settled......

    I'm laid up again (but with a knee problem). Have to wait to have some keyhole surgery which is a real drag because like you I'm feeling fantastic!  I just hope I dont have to wait the few months they told my son this morning when he tried to get some early pre-op appointments made for analisis etc...(same hospital all over again...can't believe it really).  We're trying toget an earlier op date....but the hospitals are so full!  Anyway, not giving up on trying at the moment.  My son's brilliant at geting his way.

    I've got a lot of hair - dont like to boast, but really, lots of it and its all wavy and curly and a really nice colour (an ash blon/grey which shades and doesn't need colouring - everyone says).  I went to the hairdresers this morning and made myself feel more cheerful..

    Anyway, I'll drop you a line when Atia arrives!  (no matter what, on my crutches I'm going up to see the baby!)

    Have fun - sorry you're saying goodbye to your American friends (they are wonderful people aren't they?)

    and lots of love Penny x

  • FormerMember
    FormerMember

    Hi Penny,

    Has Atia joined us yet?  I have been thinking about your family and your lovely new addition.  You poor thing having problems with your knee.  As if you haven't had enought to contend with.  Problems never arise on their own do they?  They always have one or two buddies with them.  Good luck and hopefully you will soon be doing cartwheels around your garden!  

    You are so lucky having a full head of hair. I look like a boy.  I was clearing out the bathroom cabinet on Friday and found a hair dye.  I didn't even check what colour it was and thought - go for it.  Whatever colour it is will be a surprise - rather silly, but what the heck.  It has turned out a reddish brown, haha.  John told me not long ago that he would like to go to bed with a redhead!!!!!!!! so now he get's his wicked way.  I do miss my old hair but any hair is better than being bald.  

    We were at the airport last Wednesday and there were a couple of lesbions drinking at the next table and one of them had a bald head.  She kept looking at me (maybe fancied me, who knows, haha).  I was so tempted to go up to her and ask if she'd had chemo and say that it will soon grow.  My god I am so glad I didn't because since getting back I discovered that lesbions shave their hair to look butch.  Now wouldn't I have looked a twit!!

    We made it back after an epic journey and Mia (the cat) is as happy as a clam in her little bedroom.  She has been introduced to Pepper twice so far but the outcome wasn't good.  We will try again in a few days time and then they will just have to get on with it.  If necessary, one can live upstairs and the other downstairs.

    The house is very quiet now as Amy and Adam moved out on Saturday.  They are renting a really cute little cottage in Didsbury, just 5 minutes from Sarah's house.  Everyone seems really happy so fingers crossed they will settle down.  

    I have been extremely tired since we returned.  I am not sure if it's a combination of jet lag, the stress of clearing the house and the emotion of saying goodbye to our friends and colleagues.  We had a wardrobe of clothes in each house so we now have to try to declutter and do a bit of life laundry.  I am sure will end up giving a load to charity.  I actually realise that it is possible to have too many clothes.  I have found garments with the labels still attached which is totally ridiculous.

    Our friends brought their little granddaughter Freya round to see us on Sunday and she is such a cutie.  She has a cough which is a result of the surgery but it's a small price to pay isn't it.  

    I am looking out at my garden as I type this thinking that I need to get out there and return it to it's former glory.  It's a beautiful later Winter/early Spring day so maybe I will do a couple of hours and blow a few of these cobwebs away.  

    Oki doki Penny, I am going to hang some washing out in the garden and will make an attempt to weed one of the flower beds.

    Take good care of yourself and enjoy your lovely new granddaughter.

    Love and hugs

    Lorraine

    x