Hi Everyone,
Thanks for all your encouraging comments advise and general kindness it has been much appreciated and helpful.
Well here we are at; day 5 post Op 1st TURBT, (you mean i have to go through that again!)
I can say that the whole experiance was pain free up to the point following the removal of the catheter, that in itself was done so expertly i dont know why i was making such a fuss about it, the sister must have thought i was a complete whimp. i opted for the lumber punture type anesthetic as mal had advised and really hydrated myself for 2 days before the event,he said that was a good way to go, and indeed it was, i stayed concious throughout chatting to the anethertist about his holiday in Croatia, motogp, cars, work, and fixing the world debt! (of which i know nothing!) then suddenly it was anounced that i was done, (40 mins only) spent an hour in the rocovery room doing nothing and feeling no pain whatsoever, was then wheeled to the ward and that was it, arrived home sat afternoon around 18:00 so around 24 hours away from the house!
I can say that taking a pee is the only severe pain i am experiancing, the inital ones being the worst, and each day its getting better, i do have some discomfort in my lower abdomen like a dull ache and it feels sore inside like someone has had a rummage round with a blunt instument, but apart from that i feel great.
However last evening i came over all weird around 18:00 just felt totally washed out, ached all over, and had fluttery feeling in my chest, i was so tired i went to bed by 20:30 and slept until 02:00 when i needed to pee, about the first time i have had to get up in the night for a pee! then stayed awake for the rest of the night. I am having trouble sleeping and only get about 2 or 3 hours a night, the slightest noise or disturbance wakes me, which is a pain in its self as you never get relaxed.
While in hospital i had the chemo washout which stayed in for an hour, i didnt have any injections in the stomache of which other people have spoken about, and i only had a couple of pain killers because my back was aching just before i left and i thought it might help when having the next pee, especially as i passed out momentarilly doing the final 3rd pee in the hospital, i actually cried with the pain of it! (very unlike me i can assure you)
So i am up showered and dressed this morning its raining cats & dogs and very dull, so i guess i will stay inside today, and clean the house some more! I feel quite good today, but a little down thinking about the future and hearing people talking of treatment times of 8 and 10 years! and all that goes on inbetween fills me with horror to be honest, it really could not have come at a worst time for me financially, so i am stuck and unable to move in any direction for the forseable future.
Next up is i have to have my other end examined for similar symptoms very soon, so i could soon be found in other areas on this site! oh god i hope not.
Be good, take care, hope we all have a good day.
pauli...............
