Well, I have received the reports I asked for - the letters to my GP, the ct reports and the ct images themselves. In one way it's made me angrier than before because five of the affected sites are clearly listed in one report but the oncologist claimed he didn't know where they were.
In another way, it's put my mind at ease, seeing for myself the extent of the mets. It took quite some doing, staring at images…
If I was reading my life as a book, I would have scrapped it by now as being too unbelievable.
First, despite being promised a face to face appointment this time, they made it another phone appointment. I wasn't sure how I could sign the Denusomab consent form over the phone so I rang and got them to change to to a face to face. Well, not so much a face to face, as a mask to mask, but still...
I walked into the…
So - the oncologist telephoned again on Friday as promised. He seemed to have no recollection of the previous week's conversation in which he let slip that I also have bone metastases and have had for months. I asked him again "WHICH" bones and this time - he told me he DOESN'T KNOW! The report just says "multiple". I had to ask him about the liver mets - fortunately they are stable and the…
Back in 2003 or so - when I was just 31 - I found a tiny, painless lump in my left breast. It disappeared the next day so I thought ".....probably hormonal. It's coming up for that time of the month". I forgot about it for a week. Suddenly, I got a very brief - lasting a mere second - stabbing pain in my breast. It felt like being stabbed with a needle thin razor. It went as quickly as it came.
That night…
The middle bit is loooooong and, I'm sure, a familiar tale. I was now 32, and had a mastectomy, lymph node removal and much angst over how this made me feel. I could have done with someone to talk to but was excluded from the support group because "my age might have made the other ladies uncomfortable".
I had to make do with leaflets - an abundance of leaflets that I'm sure were helpful to some but not to…
