Sorry to be so full of doom and gloom, AGAIN. Believe me I would be much happier posting good news but it just seems to be getting worse and worse.
John is having so much pain and sickness this morning that he's absolutely exhausted. The Mac Nurse came yesterday and upped his pain meds, yet again! He's now on 60mg Oxycontin twice daily, paracetamol and 1.5ml of the higher strength Oxynorm when required. He's taken everything he can possibly take this morning and there's still no improvement. I'll give it another half hour and then phone the out of hours nurse to give him some injections.
While the Mac Nurse was here, I queried what was actually causing him so much pain as the Oncologist doesn't seem to think it was the cancer. She said that it sounds as if it's 'capsule' pain from the liver expanding due to the tumours, i.e the liver is surrounded by a capsule which doesn't stretch when the liver is inflamed. (That's how I understood it, any way.) Whatever it is, it's breaking my heart to see him suffering so much.
Not much more I can say really. We are expecting his daughter, granddaughter and his brother and sister-in-law today but I will have to be firm with them and tell them to leave if it's too much for him. I know they mean well and John loves to see them but he makes so much effort to appear 'normal' that it takes him a couple of hours to recover.
Doesn't look like we'll make it out of the flat today. I'll have to take Gemma out at some point but she misses him so much. I have to keep her on the lead, otherwise she keeps running back to the car to find him, convinced that he should be out with us. So we're all suffering in one way or another.
Once again, sorry for this miserable post and I hope life is treating you better than it is us at the moment.
Love to you all, Madge x x x x x x
