My Diary Went to Newbury Motorhome show and now today have got my results

2 minute read time.

We set off last thursday for the Newbury motorhome show but we got caught up in so many traffic jams going and coming home which made 7 accidents we had to pass.

I motorcyclist has definitely been killed at West Malling And the other accidents must have had serious injuries so I do wish the would drive more sensible nowadays.

We had a lovely time at newbury rallying with my cyber friends of the MHFacts and i enjoyed meeting lots of friends again.

We sat all together in the field drinking, eating and had lots of fun and games.

Bill came on Saturday with Betty and their Grandaughter and we went to the drinks tent where we  sat with a beer and chatting away like we were old friends.

Then we came back to my Motorhome for a cuppa and to show it off as Bill wants to buy a small one so he could see how much space there is.

I have loved camping in her as she is very easy to keep clean and tidy and yet has everything in her to make it a great time.

We said our goodbyes and i will miss him but will be in contact when he is back in Saudi.

I had wanted to go to Wales after the show but we had to get back for my hospital appointment today.

We got up early today and went to Canterbury to do our shopping first and the get the little hospital bus.

I sat there very nervous and I knew Ray was worried to.

There were other people going in and then coming out with either good or bad news so there were smiles or tears and I began to wonder what I would come out like.

Well it was smiles –The result is that the disease is stable.

The Oncologist cant believe the life I’m living the life Im living as she just hasnt known a patient like it –she said.
I told her I have a new motorhome and have been camping every weekend with lots planned in the next 3 months–she is just amazed and asked me how do I wish to proceed.
I said with scans every 3 months is that a problem??
Oh no!!!but some patients dont want to know how its doing —I said I want to know the minute it starts up again and then you can deal with it.
How could anyone not want to know???
So thats how it is left I will get an appointment again in 3 months.
She said all the pain Im getting is normal as the Lung is a painful area to operate on and the pain in my heart that I get is normal so just take a paracetamol.
We came out elated that we went for a dinner and raised a glass.
My nasty is having a battle and Im winning at the moment.
I have had a phonecall from my Son who is in Spain for a holiday so he is settled now that MUM is ok— Bless him that really please’s him so now he can relax and enjoy Spain with his girlfriend xx

My nutter of a friend --Linda

Louis and Me

 

My wonderful friend Bill and his lovely family

Anonymous
  • Thanks everyone.

    It was great news and I wont the same in 3 months time.

    I have the main turmour but the lung is covered in seeded tumours the size of smarties so I hope none of those decide to erupt.

    I think it is down to what fight you have inside as the doc said some patients dont want the scans to know whats going on.

    I think that is a bit silly to bury your head in the sand,

    You have to know what you are fighting and I want to know the minute it starts again so that I can go in for any new trials etc etc.

    There has to be something that will get this Meso under control.

    Why is it such a deadly disease --why cant the experts find a cure??

  • FormerMember
    FormerMember

    Hi Locovan,

    Thats great news I hope it continues to improve. You are dead right if you dont know how things are going. you wont know what you are fighting.

    So keep you head out of the sand and be as positive as you have been,All the best and Good Luck.

    Take care and be safe.Love SarsfieldXXX

    P.S. Love your Motor Home.

  • FormerMember
    FormerMember

    Congratulations on your results,I really admire your courage and strength of mind, amazing!

    Big hugs and best wishes,

                                          Alison.x