tonsil cancer...our journey so far...chemo cycle 2 !!!

1 minute read time.

sunday october 17th 2010 - went to pick trev up today......end of chemo cycle 2!!! went into hospital on tuesday....been hooked up ever since!! i ve been to visit him daily and yet again he s done brilliantly!!! had a slight infection in his trachy and peg sites....always does when he goes in hospital!!! but course of antibiotics and he s champion : )

there was another lad his age ...37....in the next bed...was really weird..turns out he lives close to us...has the same cancer...and his girlfriend has same surname as me!!! weeeeird!!!!!!!!!!!! him and trev were both discharged today. trev is a cycle ahead and they have different treatment schedules reg peg and trachy etc. so they have had good chats!

well.....trev has again taken to chemo really well . so far...no sickness or tiredness....still loadsa energy and appetite!! we went out to our verydeserted local for a swift half...game of pool and some juke box tunes! was lovely!  he s bought hats....dunno if the hair is gonna jump off yet but he s waitin and seein!!! bless him. he really is inspirational...well to me....only diagnosed aug 3.....trachy..peg.....teeth out...chemo.....and he s just goin for it!!! every day is a day closer to the rest of our lives together!!

xxxx

Anonymous
  • FormerMember
    FormerMember

    good luck on yr exam!!! im totally outta touch with work at the min. i work in a school...and i havent been back since we broke up in july!! trevs diagnosis came aug..and its just been full on since. think im goin back november when he s having radiotherapy. we ll see. he s not well today....having a bed day. his temp is fine..but he feels tired and sorta like he s gettin flu. the nurse think s maybe a bug or poss the side effects. he s had none so we dont know what to compare it too. just gonna see how the day goes. gonna go back and visit him down his soon. fingers crossed it passes. we thought he d been lucky like with the lack of side effects. maybe they gonna kick in...who knows!! cud be a bug like coz the nurses had dropped like flies on his ward last week.

    hope this message finds u well

    lisa xxx

  • FormerMember
    FormerMember

    Aye might be that poor Trev.  i hope it just a few hour thing and passes soon.  I've not been too bad since day 11 ut I do tire quick.

    Did'nt get exam done because my tutor was ill so just had a catch up and a coffee with staff in the Open Learning Centre.  I am quite good friends with one of them and shes always on the phone checking on iz to make sure I behave and don't overdo it.  Shes lovely.

    Well my turn to make tea so must be off for a bit catch soon x

  • FormerMember
    FormerMember

    hiya . nice for you to have a catch up!!  i did with the girls on sat afternoon. for a bit of a party animal me life been sorta on hold for months. i dont mind like. i wanna be with him...makes me feel better if that makes sense. went to see him this afternoon and he looked awful....weak and just ,,,ill !!! mind ya he looks like that without a shave and hair wash bless him. i cried to his mam. couldnt help it. i just hate to see him ill. he s done sooo well.....finished second chemo cycle and this is the first bit of illness. i just go into panic mode...even tho i try not to. think its coz i ve seen him sooo ill...and then obviously loads better wi the chemo...now he looks poorly again. hopin like u sed its just a few hours thing. fingers crossed

    xxxx

  • FormerMember
    FormerMember

    Mine are crossed too.  Your bound to get upset sometimes and its sometimes good to have a good cry.  Yes you should have some girly time if only once a month or something.  You need to be strong too but I would be the same with my Keith if it was him.  Keith has been brill and so has me 15 year old daughter.  My daughter cleans in the week and hubby at weekends and I help where I can if I am up to it and it feels good to have a turn at cooking as its always me that usually cooks now I get a break.  

    Inbox me if you ever need to chat xxx

  • FormerMember
    FormerMember

    another poorly day...but now his dad has come down with sickness and the runs...so my reckonin is trev cud be having part chemo reaction and part bug!!! poor lad!!! he s been bed bound since mon night!! cant wait to have him back to normal...whatever normal is!!!  he s had a letter to get him in for radio mask fittin..mon...so we off to james cook then.

    got him sorted with tablets etc.....i apparently rouse him a bit more and keep him occupied..they reckon he listens to me!!! hahaha a man listening!! theres a first! (sorry blokes.only jesting!!!)

    oh well tomorro is another day

    xx