Hey Everyone,
I did have a 1st blog but i dont know where it went :S anyway..
The lowdown is..
I was diagnosed with Non Hodgkins Lymphoma back in March this year (2009) i have just finished 6 sessions of RCHOP chemotherapy about 5 weeks ago,
I had a pet scan to see the result of things last week and..
Was hoping for remission but the tumour in my liver has gone and the one by my kidneys has gone but there is still some left infront of my heart in my chest.
So i went to Haemotology clinic Thursday just gone, and my oncologist told me i will be admitted next week for 4 to 5 days for High Dose Chemo :( then go home to rest for 3 weeks, then back in again for another 4 to 5 days for another dose!
Then another pet scan, and maybe after all that might have to go to London for stem cell transplant (which totally confuses me)
I must admit after everything we've been through i was kind of hoping for an all clear but i clearly need this extra treatment as i have had awful night head sweats lately and a lot of dizzyness.
If anyone else has had high-dose chemo please tell me what the worst side effects are as the oncologist said they can be severe, including mouth swelling and ulcers not forgetting the dreaded nausea and vomiting :/
My good ol' mum is staying with me at the moment so she can be here for my 14 yr old daughter when i go in hospital and she is currently cooking the biggest fry up you have ever seen (Hey I'm making the most of my freedom before next week!!) :D
Don't know much more than that at the moment - all will be relieved tomorrow I hope. But not everyone gets 'severe' side effects - some do , some get some of them, some get hardly any. We just have to deal with each bit as it happens, don't we? And if it's bad, it won't last for very long!
you're so right about the waiting causing more anxiety ,you try your best to get on with your life but its hard at times with all the worry niggling away at you :O(
please let me know how you get on with your treatment, like i said earlier i'm keeping everything crossed that its a success and that its not as bad as you think !!!!
please feel free to message me any time if you want to scream and shout, rant and rave or even just say hello lol !!!!
