my journeyxx

1 minute read time.

Hi everyone, im a 28 year old single mother of 2 wonderfull children. On the 15th of september i was diagnosed with breast cancer which came as a very big shock!!... I think you always believe it will never happen to you!! On the 4th october i had a wide local excision and 3 lymph nodes removed. Then came the dreaded waiting game.......... On the 20th october i was told that the surrounding tissue and lymph nodes were all clear!!! It was the most amazing feeling in the world to know that it was out of me :-)

I was told that it was 19mm (2cm) invasive ductal carcinoma with high grade DCIS, grade 3.

I have got to go bk to the hospital to see the oncologist, then i will begin the chemo :-( although this scares me i think its a very small price to pay!!! I have been advised that they want me to use the ' scalp cooling' as they have found a lot of women have had fantastic results using it. Has anybody else tried this??? Ive also got to have a line put in which im feeling very nervous about!!

What a rollercoaster of a emotions this journey has been, but i feel that the end is now in sight :-)

 

 

 

Well on the 26th october we went to see the oncologist ive been told i will have 6 months of chemo and 3 and a half weeks of radio, hickman line will be fitted next friday and chemo begins on the 10th november!! Would relly like to hear from anyone that has tried 'scalp cooling' and any hints and tips on getting through chemo, especially those first 12 weeks when im having epirubicin which i am told causes all the nasty side effects. xx

Anonymous
  • FormerMember
    FormerMember

    This is also worrying me (the bowel troubles) I also have a prolapsed womb so find needing and going to the toilet extremly painfull as it is let alone with epi making it worse!!!! Ive told my gyny about this and her response.... take some paracetamol lol

    Im back at the hospital again wed for 'another chat' so im going to bring this up with them, chemo is going to be bad enough without any extra discomfort!!

    They have already said they will be giving me a higher dose of anti nausea tablets as i suffered with morning sickness.

    I love this site its so nice to be able to have a moan, especially when you feel like you cant talk to family or friends because of 'the look' that they give you lol

    Emma xx

  • FormerMember
    FormerMember

    Hi Emma

    As Christine says you seem to have a good attitude about it all so you should fair well. Attitude is everything as they say. As for the cooling give it a go, you can always stop if you decide it's not for you. You seem to be very positive and I think this is the best way to be, sometimes if you tell yourself you're gonna be ill you are lol.

    My mantra for chemo was 'if it's a good day get up and do something, if it's a bad one stay in bed'. Fortunately I didn't have too many of the bad ones! Don't push yourself too hard though, it's ok to have 'bad' days and only to be expected. Listen to your body and if it's screaming 'Rest!!!!' then rest.

    Hugs Maxine xxx

    P.S. Feel free to PM me anytime for anything xxx

  • FormerMember
    FormerMember

    I agree with you maxine, attitude is everything!!! We all know how crap you feel when you have a pj day lol My goal each day will be to at least get showerd and dressed and do the dishes!!! I shall take great joy in watching my sister do the rest lol ;-)

    Did any of you have trouble sleeping??? I havent even began treatment yet and yet i just cant seem to shut my brain down and havin the most horrible of dreams when i do sleep!!!

    Emma xx

  • FormerMember
    FormerMember

    Hi Emma,

    I asked people about the dreaming thing at the beginning of my chemo. I have always had vivid dreams but these were like horror shows. They did fade because of this and the fact that you've not yet started chemo, perhaps are brains were were just letting out the terror we wouldn't allow out during the day!

    I also had the brain not shutting down thing but post chemo this is getting better, maybe it was stress. You may find steroids keep you awake around your chemo time. This didn't happen to me but I've heard others talk of it.

    Hugs Maxine x