We have had a good start to our week, we had our MRI results which showed Kee's tumour is stable and has shrunk, her eyes have improved, but aren't perfect. But we got the ok to go to disney so we have booked for all 6 of us to go in June and we are looking forward to that, fingers crossed things stay as they are so we can enjoy it properly.
I now also feel so selfish for feeling overwhelmed when she is the one going through this dreadful disease and these awful medications, but having 4 small children all under the age of 6 and one being terminally ill is beyond anything I ever thought I would imagine to have to endure. Today is better my husband spoke to his work about compassionate leave and it seemed positive that he would get some paid leave to help me during this.
For now I live day by day, I don't want to think of the future. I can't stand the thought she might not make it to christmas or even her 6th birthday in August.
For now I live for today.
