Hi All,
Anyone had any experience of having a feeding PEG fitted? My mum has stage 2B cancer of the gullet and was fitted with one after radiotherapy finished.
Wondered if anyone else has been through this, she's finding it hard to adjust to it. Any advice would be great.
Thanks
Jen
x
FormerMember
Hi Polly,
Thanks for sharing with me, my mum doesn't cope well with the overnight feeds either, she said it makes her so hot in the night it's unbearable. She also has to do bolus feeds in the day aswell, not sure how long this will last, her dietcian wants her to try and start eating very soft foods to see how she goes on with that. Like your mum she really missies certain things and it's always the foods she can't have - like a bacon sandwich!
Thanks for the feedback, it has been good to be able to talk to other people going through simialr things.
My mum's is still quite painful but she only had it done a month ago though the family have all be shown how to do flushes and connect the feed up etc which is like second nature now.
Hoping she will soon be able to try soft foods - she is craving a big bacon sandwich at the moment and I feel really sorry for her as she can't have it!
Thanks for replying, it is nice to be able to talk to other people about things like this.
Glad you're managing to eat still, my mum should be able to start to try soft foods soon like ice cream. She did say it's a weird feeling that you can feel hungry but then can feel your stomach getting full as the feed goes through the peg - we say in our family now that she has a little 'pot belly' which is good as she's gaining weight after dropping down to 7.5 stone while she was going through her radiotherapy.
Really hope everything goes OK for you tomorrow when you have yours fitted, keep in touch.
