This Site
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In my opinion this site was messed up the day the macmillan people changed the site from " share" and " what now " and in my view its never been the same..
so many people couldnt use this site and ended up with no place to go, so many threads and posts vanished never to be seen again...
no one even wanted the changes..infact everyone DID NOT want the changes only those that run this site didnt listen and didnt care a dam... It sure was not something the members wanted thats for sure
many warned what would happen when the mac people turned this into a facebook style site and stuck a version of this site onto facebook.....
all the dam spam messeges we get bombed with and all the times we have asked something to be done about it and all we get is o something is getting done....BUT still i get these dam messages....its pointless reporting it because nothing ever gets done...
in my opinion , this site doesnt reflect the reality of having cancer....on here ever since the change over every other new member is terminal, diagnosed as terminal with weeks to live, or someone has just died...
but in reality the majority of people when diagnosed have a chance or recovery or remission.....but not on here...
were have all the patients gone ?
since the change over its become more of a carers site and if a patient gives his opinion he is stamped on by carers.....
someone said lifes not worth living......well i am a patient fighting to live.....as are others....maybe the problem is as i say when we log on we get a list of ALL the latest posts and we do NOT see that was posted in a coping with loss forum....blame the people who changed the site.....as i say we use to get a list of all the different forums come up and we could then go to the forum related to what we was looking for...
to be honest to me i think any new genuine patient just coming on here will just freak out and end up scared stupid if straight away the read a bad death thread.....that should be in a " death forum" and not on the main page....
coming on here its more like a bereavement forum and a death forum nowadays
try posting a posative thread and see how no one will use it......
i started the today i had a good day......only 2 people used it in 3 days....BUT hang on...the tv advert says it not all about cancer its about good days as well...only its not is it ...not on this site....
i remember there once was a big " jokes thread " on share.....its died a death....
there was a dance cancer away thread were people would share music....but its died a death as well...
think what you like but this site is not a shadow of what we once had...
why do you think so many people wont post on here anymore.....and so many have made there own pages on facebook and then invite people they trust to join them...so dont think its just me who is thinking the same things...
also......on the old sites we all trusted everyone on here.....i can only remember a couple of fakes on there...
but on here ???
half the time you dont know who us genuine and who is not.....again dont think its just me thinking the same......why do you think that on the old sites every new member got lots of replies.....now half the time new members dont get a reply or more then a couple of replies...
a message to the fakes.....we are not stupid...you might read stuff on the internet but your still easy to spot sooner or later...
course no one agrees with me but i think everyone should have to fill in a profile..and stop just putting " iv got cancer" "my friends got cancer and is dying" " x had cancer for 4 years and died yesterday " [ so why didnt you join during x"s 4 year fight but the minute x died you found the site and started posting about x and his / her horrible death ? ] .....
are you trying to scare genuine patients ?
personally in my opinion thats just what some people are tying to do..
id like the profile to include....type of cancer.....type of treatment if know and even hospital of treatment or town people live in....
but i know no one wants that do they...
so i predict this site will get worse for scammers , spammers and fakes...
if you was on the old sites you will know what i mean ...
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so just like many others...i am on facebook.....and i wont bother with this site again apart from replying to my good friends who pm me...
its a shame...
it shouldnt be like this...
the blame is with those who messed the site up with there pointless changes that no one wanted...
my advice to all genuine people on here......just be carefull...and dont ever be afraid to ask anyone things like what hospital do you go to.....were do you live etc etc...
because the people who run this site sure arent going to do anything about making it more safe for genuine people...
and most important.....
no one has to agree with one thing i say....
it matters not....
im not a person who gets depressed...far from it...
but if this site is making me feel depressed then i doubt if i am the only one....
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