In the beginning

1 minute read time.

Well, I never imagined I'd ever be writing my first blog ever on a cancer support website, and as a patient.

It's 8 days since my diagnosis, and I now accept that yes, I do have adenocarcenoma of the esophagus. The original endoscopy and CT scan indicate that it's early stage, and operable, but there's more diagnostics being lined up to find out exactly where this Beast within me resides. So, I'm waiting for dates for an ultrasound endoscopy, an ultrasound scan, and a staging laparoscopy. I have a meeting at the oncology clnic on New Year's Eve, where I get to meet the surgeons, consultants, nursing teams etc., and get to see the ITU where I'll be after the operation.

Today is Boxing Day, and yesterday was one of the worst days of my life. I have 3 kids, and somehow there's stil the nagging doubt at the back of my mind that this may be my last Christmas with them. I tried to shake that feeling away yesterday, but it was very persistant. Today, I'm back to my optimistic self, and ready to fight, and beat, this hellish thing!

Today, I feel better, and ready to continue to ensure that my body is well prepared for the fight ahead. I've dug the juicer out, and cleaned it up. It will be a well used machine in the weeks and months ahead! I'm going to use some money I got for Christmas to buy some super-duper bathroom scales, because I know that nutrition and fitness, and minimising weight loss are essential in this battle.

At 44 I'm young for this disease. I'm also fairly fit and healthy, and have none of the usual risk factors for this cancer. So, I know I'm unlucky to get it, but I will not wallow in self-pity, because I also know that the factors for survival are in my favour, and I'm well placed to have the necessary operation, and to fight, and win!

I also know that the love and support of my family, friends, and loved ones will help get me through, and that one day I will be thousands of miles from here, both mentally and physically, and togeter with the love of my life, embracing a long and happy future.

Anonymous
  • FormerMember
    FormerMember

    Simon, welcome to the place that nobody wanted to be, here you will find support and comfort, you have the right fighting spirit, so, 'let battle begin.'

    Best Wishes

    Tony.

  • FormerMember
    FormerMember

    Hi Simon

    It really sounds that you are preparing yourself so well for the fight.   Keep blogging - it will help  - but I hope too that you will soon be able to be 'thousands of miles away'!

    Best wishes, Grace.

  • FormerMember
    FormerMember

    Hi Simon

    As everyone has said welcome to the site no one wanted to be part of, but it will be a godesend in the coming months I'm sure (it was to me). Through good days and bad someone here will provide support, laughter and understanding.

    Best wishes

    Fiona

  • FormerMember
    FormerMember

    Hi Simon

    I'm sorry to hear your news. I have just lost my partner at the age of 42 to cancer and like you he was also very unlucky to be diagnosed with his cancer type at an unusually young age. What I must say first is that we knew from day one that his cancer was incurable. However, what I wholeheardtedly believe is that is his positive outlook and his unquestioning belief that he WOULD (not could) win the battle was his most powerful weapon and why he was able to battle for nearly 6 years.

    In trying to help him, I did loads and loads of research and yes he got out his juicer too but never used it. Make sure you get juicing - there is so much evidence out there to suggest it helps especially in the early days when your defences are not so battered. I know we all have to find our own paths and juicing etc won't be for everyone but I have read so much interesting stuff about kicking out the dairy too! (Your getting this advice by the way from someone who never eats fruit but who eats a lot of cheese!) I could pass you some interesting links/books that I found useful if this may be of help one day.

    That was my advice. N's advice would be stay positive and always have a 10 year plan!

    Good luck and all the best!

    Liz