I have recently been diagnosed with Lymphoedema. I am attending the physio at my local hospital. She has given me exercises and lovely lymphoedema garments to wear on my arm. There are times when I am fine and then there are times when I do not feel as good. I have been told that it is long term. To date the swelling has gone down slightly.
FormerMember
Hi all - have you seen/signed the Lymphoedema Petition?
Iif you do feel you would like to add your support to the petition, the link is:
Only your name (no other details) will appear on the petition.
Only UK residents/British citizens (expat is fine - there is a drop-down box to check for this) may sign.
The signing procedure is only complete after you have clicked on the link e-mailed back to you from the Downing St website (this may go into your junk mail folder).
I nearly cut the top of my finger off - on my surgery arm side - two ruddy weeks after surgery. Luckily i had lots of antiseptic i poured on it but although it took ages and ages to heal its still numb on the top of that finger. I wonder if i will get the dreaded L. I cursed myself for being so stupid, and do wear marigolds for washing up and i do moisturise but like everyone else i worry more about L than cancer. Its never ending the worry is it. xxxxxxxxxxxxxxxxx
I don't know anything much about this condition - please can anyone tell me if you are more likely to get it if you've had full clearance than if you've only had a few removed, or doesn't it make any difference?
Also now am quite worried about Bahons comment about flying as I work as cabin crew and was hoping to return when all this is over. Can you recommend any websites where I can find out a bit more about this? Obviously I'll ask my breastcare nurses too.
you should have been told about this when you had your treatments by the cancer nurses. Ring the macmillan help line and they will direct to the right people to ask.
