No news is, in fact, no news

1 minute read time.

For those of you following the ongoing Cancer Saga - and if you have dropped dead of boredom along the way, I cannot say I blame you - today I had my post-chemo appointment with the oncology consultant, which I'd been quite looking forward to, having been hanging around in a kind of limbo for the past month. Results! I thought; Conclusions! Decisive Action! That sort of thing!

Alas, no. I have neither good nor bad news. The tumours - and I appear to be absolutely riddled with tumours - have shrunk, but are still hanging on, and the oncology team hasn't decided whether to try surgery or leave things as they are and see what happens. They're discussing it at their meeting next week. ("Any questions?" "Yes, why didn't you discuss it at last week's meeting?")

I suppose it could've been worse, but it leaves me in limbo still, and I HATE that; I'm still too ill to go back to work, but not so ill that I am not going off my head with sheer boredom. Impasse.

I am off to try to find a game that involves SMITING, so as to relieve my feelings. And also to try to stop singing "Uh-uh-oh-oh-oh, little Cancer Girl" to myself, as that helps exactly no-one.

Anonymous
  • Hi Hils

    to have waited so long in hope of some news hopefully good news then to be left in limbo is worse than awful apologies for the understatement.

    I too can not understand if they have the results why then could they not have had their meeting before your appointment and at least given you something concrete.Guess all this questioning is of no help whatsoever and I am sorry for that.

    Shrinking sounds good but when they say there are so many and thoughts of surgery well that is damn scary .

    I hope they get their act together soon and at least you get some clarity as to what is next.

    Limbo both physically and mentally is a crap place for anyone to be 

    Also sending you the warmest and biggest of hugs

    Cruton xxxxxxx

  • FormerMember
    FormerMember

    Hi Hils,

    Firstly I'm sending you some warm welsh cwtches because limbo is a cold and lonely place to be.

    I suppose tumours shrinking is good since at least you know something that Mr Crab does not like.

    I also cannot understand how people used to dealing with cancer patients can be so offhand as to know that they have an upcoming appointment and still not to be prepared.

    I hope they get this sorted quickly and get you off the hook which is limbo and once again into the fight to send Mr Crab packing.

    May any treatment be fairly easy and yet very successful.

    More hugs and cwtches,

    Odin xxx

  • FormerMember
    FormerMember

    Hello my lovely..

    Not sure what to say really...

    except to echo your comment WHY THE FUCK DIDN'T YOU DISCUSS THIS ***LAST*** WEEK?!?!?!

    Good grief.

    BUT, as I said earlier elsewhere, at least the tumours have shrunk, ehich IS a good thing, and if that means they can operate, then huzzah - you will be knocked out with anaesthesia, and Mr Crabby removed, which I wish was an option for me! BUT, if they want to give more chemo, then that is also good, because they can zap Mr Crabby even more and preferably into non-existence!

    Huge Cwtchs and much Love being sent to you..............

    Xxxxxxxxxxx

  • FormerMember
    FormerMember

    Oh Hilary, it's just so naff isn't it?  We always found that Dad had appointments on a Tuesday (they held their multi-whatever meetings on a Tuesday) and so we had to wait until at least another 2 Tuesday's for updates....they obviously need to get the WHOLE hospital together and god forbid an oncologist could make a decision by themselves (I know, I'm not being fair here but we often just want to shout SOMEONE, SOMEWHERE MAKE A BLOODY DECISION).   Went a bit shouty there. Sorry.

    What do they discuss in these multi-wotever meetings anyway?  -  we often had 'let's wait' or "we might know more after a scan".....US.....when can he have a scan??  THEM.....ohhh, lets see, we'll need to discuss, he'll need blood tests before, discussions on the blood test and then we can probably book him sometime in the next 3 months.

    I think they use the multi-wotsit meetings to discuss what they're having for tea.

    It's a bit grrr that you've still got the tumours but I take it as a positive that they have shrunk?  I hope so.

    How very frustrating for you. Hope for better news for you v soon.

    xxxxxx