Keeping abreast - the weeks after my lumpectomy (10 August 2021)

4 minute read time.

I have a lot to be grateful for. The breast lump has been removed and hadn't spread to my lymph nodes and family colleagues and friends have all been a tremendous support.

Sleeping

Lying on your stomach is a very good sleeping position if you have Covid (I've fortunately avoided this but I do fall asleep like this). When I advised a friend of mine with a larger than life personality, to sleep in this position, when suffering from the virus (apparently it helps with the breathing) she explained she had "two very good reasons" why she couldn't! But when you've had an operation on your breast you're advised to wear a non-underwired sports bra 24/7 and sleep on your back or your non-operated-upon side. Takes a bit of getting used to, I can tell you. Have you ever had a massage on a massage table? The kind that has a hole to put your face in? A friend who'd been through the same procedure 18 months before me told me how she'd fantasised about having a similar hole in her mattress lower down, so she could let her new breast hang through it and continue to sleep on her stomach. Unfortunately for both of us, I don't think this has ever come on the market.

Pain

Having a lumpectomy with lymph node removal and an 'uplift' was not a comfortable experience. I wasn't sure what to expect but the pain was by no means the worst I've ever had to experience. I didn't cry or scream. In the post-op room they asked me to rate my pain on a scale of 0-10, with 10 being the worst it had ever been (I think I'd score my first experience of giving birth - without analgesics - as a 10). Initially it felt as if someone was sticking 28 needles in my breast around the wounds and my breast itself felt as if it had been punched. I was still hooked up to a canula in the post-op room and over a period of time (I actually have no idea how long this was) they upped my medication to the maximum dose whilst the pain reduced from a score of 7 down to 4 or 5. There were now far fewer needles piercing me.

Before I left the hospital that day with my shiny new breast, incarcerated Madonna-like in brown surgical tape (my surgeon later described this as "The Marsden Bra"), I was advised to use paracetamol and ibuprofen. I told them I didn't think this would cut the muster and they prescribed codeine phosphate to go with it too (with a warning that over-use could cause addiction). That helped considerably in the first few hours and days after I returned home... and the fact that there was still a considerable amount of anaesthetic in my body. Still didn't help with my sleeping, though!

What surprised me was the pain from the intubation - that was more difficult to contend with. It felt like I had a bad case of tonsillitis and hurt like hell. I spoke to the MacMillan nurses on the phone and was advised that lemon and honey in hot water would be too astringent; so long as I wasn't allergic to it, because it shouldn't interfere with my medication, I should try chamomile tea with honey instead. Apparently chamomile has anti-inflammatory and anti-bacterial properties. Apparently it has anti-cancer properties too - bit late to find that out!

Over the next couple of weeks the breast and throat pain from my operation reduced and I was needing fewer and fewer pain-killers each day. Probably a blessing for the neighbours as I stopped singing for over 3 weeks!

Getting back to normality

Now, several weeks later, I still have twinges but am no longer in constant pain. And the twinges are minor. Most of the time I forget that I've been opened up and mauled about. I have started to use anti-perspirant and have baths again, rather than showers, but I still try and keep the breast dry during my ablutions. There is a reason to avoid soaking my breast - getting wet / soft in the water can weaken the incision line the tissues have to have time to heal and become more water-resistant.

I started on endocrine medication a couple of weeks after my op (my type of cancer cells were fed oestrogen and it's now being removed from my body). So far I don't think I've turned into a menopausal witch, but my family might beg to differ! Having had further results from an amazing genetic test (which confirmed that the likelihood of my developing a new related form of cancer somewhere else in my body in the next 10 years is low, and I won't need chemo). I think I've been through the worst of it now, I'm feeling emotionally robust and ready for the next stage of my treatment. Radiotherapy here I come!

Cakes

I created a Baked Alaska for someone's birthday.  My post operation breast was round and no longer hung downwards; apparently it will take about a year to shrink and settle into its final shape, even if I wasn't to have radiotherapy. I was reminded of my new breast when I baked the Alaska, but didn't mention it to the person I made the cake for. Perhaps she'll one day read this blog - part of me hopes she never does!!  If you fancy baking one yourself have a look at my cake blog https://wordpress.com/post/kathiescakes.wordpress.com/887 

Anonymous
  • I usually get texts and emails (followed by lett rs) offering appointments too.  I do hope that all goes well for you and that telephone call gives you what you want. My attitude with the Prosigna test was that I was lucky to have this test and whatever the result it was good news, either that I would get treatment in advance to stop something that could be potentially serious or that there was nothing to be concerned about. 

    My next step is radiotherapy (and I'm on oestrogen-suppressing medication for 5-10 years). Don't know when this will be ... or where. Makes things hard to plan but I'm still grateful for everything I have.

  • Thank you, best wishes for your treatment. Fingers crossed my telephone call is good news for my results, hoping it's the same reason as yrs and giving me good news over the phone, and saving alot of time with appointments.  So all yr results was given over the phone. I havnt received no results yet. Think i might ask when I have my dressings removed tomorrow if any news.  xx

  • Ii can imagine you are going though a lot of stress at the moment. It's hard to predict what the hospital teams are going to say, but hold onto the hope that it's not good practice to impart bad news on the phone. My hospital were very good at telling me what to expect at each upcoming appointment. I'm afraid it was only this one result that was given to me over the phone (they called me out of the blue), but most of my face to face results have been good news, so that shouldn't stop you hoping or make you worried about face to face appointments. Why not phone your breast care nurse to ask - this may allay your fears?

  • Thank you, I do have an appointment tomorrow, all my dressings are being removed, so while I am there I will ask.  I quite agree it's not good practice to impact bad news over the phone.  My bcn will probably be able to shed some light on this tomorrow and I can go from there xx

  • FormerMember
    FormerMember

    I am on a very similar journey with ER + BC. Because they missed it for over a year even though they saw something in US, now is the time for op 13th Sept then radio and we wait to see for results of oncotype etc. I am on letrozole, hot flashes, general aches, anger,  more. I also use DIM and other supplements to reduce oestrogen from my body. They saw something in left breast in CT Scan but said they will look again in 6 months to see if it is cancer or not but they feel it is just a cyst, ( I remember the same talk last year- hopefully, this wont be added to legal team complaint about negligence). I have been removing all oestrogen based foods or foods that produce oestrogen in my body and have lost 21 lb in 5 weeks. That will continue until I am done I suppose. They wish to offer me bisphonates but I have read all research on both sides and will refuse it, there is not enough significant science to show it is a necessity. Far too many side effects make this type of treatment worthwhile and it is all a huge experiment- I am no guinea pig! Good luck all and after removal of 1/2 breast and then a fix from remaining breast tissue and reduction, I will have a year of absolute anger before they pair up my other breast.... I do not think these male surgeons fully understand the psychology of a woman's breast!