Cancer isn't fair, but your boss has to be

2 minute read time.

Each year almost 120,000 people of working age are diagnosed with cancer in the UK. In 2012 I was one of those 120,000. 

I’d been in a new job for six months when I was diagnosed with cancer. On top of coming to terms with the diagnosis, learning about treatment options and side effects, and breaking the news to family and friends, I was also worried about what would happen to me at work and how my employer would respond to the news of my diagnosis. 

I was lucky. My employer was really supportive and encouraged me to take the time I needed for treatment and recovery. Some of my work colleagues kept in touch by text and email and the HR team emailed me regularly to check how I was. I was really grateful for the support: it helped me cope with treatment and rebuild my health and fitness after treatment. 

Work and cancer 

Not everyone gets that sort of support. Almost half of people living with cancer who were in work when they were diagnosed (47%) say their employer didn’t discuss sick pay, flexible working, or making workplace adjustments when they told them of their diagnosis. Almost one in five people who returned to work after their cancer diagnosis (18%) say they’ve experienced a lack of understanding of their needs from their employer or work colleagues. 

And 57% of those of us who are cancer survivors, who were in work when we were diagnosed, have had to give up work or change our roles as a result of the diagnosis. While 60% of us living with cancer, who returned to work after diagnosis, went straight back to our normal working hours. 

Fair treatment 

Many of us don’t know what our employment rights are, or how to make sure we’re being treated fairly at work. A YouGov survey in 2014 found that less than 50% of people diagnosed with cancer knew that cancer is covered by the Equality Act. But Macmillan’s campaign, Cancer isn’t fair but your boss has to be, aims to make sure people affected by cancer know what their rights at work are, and know how to get the support they need. And there isn’t just support for people with cancer. If you’re a carer, a work colleague, or an employer, you can get information. We all need to make sure change happens and people affected by cancer are treated fairly at work. 

Get involved 

If, like me, you want to help Macmillan demand better outcomes for people affected by cancer, you can sign up to be an e-campaigner and keep up-to-date with Macmillan’s campaigns on the campaigns blog

Anonymous
  • FormerMember
    FormerMember
    My husband was diagnosed February with stage 4 lymphoma and spent 5 months in hospital. He's just finished getting SSP and his boss of almost three years told him it might be better to resign and when he's well he would reinstate him. This would mean 4 weeks without any money and not guarenteed having a job. He's signed off till at least January 2015. I think it's disgusting of his boss to ask him to do this.
  • FormerMember
    FormerMember

    I was discriminated by my employer very soon after cancer diagnosis.  I didn't know I was being discriminated against.  I put my cancer treatment on hold, fought and thought I had won the battle.  My employer kept quiet for the statutory limitation period and then put me at risk of redundancy.  'Fortunately' during this period my boss asked me to work part-time because my "cancer must be effecting my work."  I thought he would not say this to a pregnant woman carrying a baby, so how can he be allowed to speak to a female carrying cancer in the same way.  I raised a grievance.  The employer drag their feet dealing with the grievance until the limitation period was reached and gave me their response 3 days after this date.  In order to protect my rights, I raised a claim in the Employment Tribunal, after which they did everything they could to make me mentally ill and to force me to resign.  My claim has been stayed because of my ill-health. (I became suicidal).  I asked for counselling in Sept 2013 and an occupational health assessment.  Neither have ever been provided, although I have recently found out that counselling is obtainable free under the income protection insurance I am supposed to have with my contract of employment.  However, this has never been offered because it appears my employers have been negligent in ensuring that I am covered according to my contract - so this means more claims but in civil courts.

    I found the Macmillan information on discrimination excellent.  I was able to understand my rights and tried to communicate these to my employer.  I was never off sick with the cancer, but have been off sick with the depression, stress and anxiety that my employer caused.  If they hadn't had a strategy to get rid of me because of my cancer diagnosis none of this would have happened and I would have remained adding value to the organisation.

    I have remained untreated for the last 2 years because I can't face the prospect of two battles.  Fortunately, my cancer has not changed.  My advice is don't tell until you absolutely have to and do a Data Protection Act Subject Access Request if you think things are going wrong.  I did this, and although a lot of data has been withheld, sufficient data was inadvertently provided which evidenced what was going on. (e.g "departure lounge" in respect of my employment from one director to another).

  • FormerMember
    FormerMember
    Hi pastorcaz I'm sorry to hear about your husband's situation. Getting a diagnosis and going through treatment is tough enough without the added pressure of an employer behaving shabbily. Have you spoken to one of the advisers on the Macmillan Support Line? They should be able to advise you about your husband's employment rights and what financial support is available. Please come back and let us know what happens - and best wishes to your husband, you and everyone around you.
  • FormerMember
    FormerMember
    Hi Jill050562 Sorry to hear you've had such a difficult time. And good on you for standing up for yourself and making sure you're treated fairly. It's good to hear that the Macmillan information on discrimination was helpful and clear. Taking an employer to an Employment Tribunal can be stressful and exhausting. Did you have any support, from a trade union or work colleague? Does your medical team know what's happening at work? Did you get any advice or support from Macmillan? I'm not sure from your post whether you're still working for your employer but you can always speak to an adviser on the Macmillan Support Line (0808 808 00 00) if you need more advice or information. Good luck and take care.