I have just joined after having been diagnosed as having early endometrial cancer resulting in a total hysterectomy with removal of fallopian tubes and ovaries on 27.01.2009. I feel fine, but had a telephone call from my consultant today with unwelcome news. He says that the committee that decide on whether I need radiotheraphy or not wish to speak to me. His report from them says radiotheraphy?? Although earlier he had said that because it was just stage 1b and no lymph or blood vessel problems he doubted that I needed it. You just worry now that it is worse than you thiink. I have read some of you letters and have already found them helpful and look forward to chatting.
FormerMember
hullo everyone, sorry for not replying but amongst other things I mislaid how to get into the site again and then had to log in again etc.
Well I went ahead with brachytheraphy, but only 3 doses were needed. Not pleasant but hopefullyt it is all over now. Obviously there are some side effects but I believe these will pass.
I have written these new details in the message box on rejoining so if any of you have read it just blame it on my lack of internet skills!!!!!
I am going away for a month, but when I return I will contact again as I did gather some useful info about clilnical trials done in respect of early stage endo and brachytheraphy. Just briefly it appears that if it ever returns, 75% is seen in the vagina, and so it appears to be a good idea to blast the vagina just for 3 sessions of 10 mins to exterminate any loose flying cells
Hi Brumas, glad you've got through the unpleasant treatment. I had radiotherapy and it took a little while for the side effects to subside. Sometimes they feel a little worse before they get better, but as you only had 3 doses hopefully they'll pass quickly. I wouldn't take any notice of statistics. They're just numbers and it sounds like your prognosis is very good, so hang onto that. Enjoy your time away. Annie
Hello I am new here, I am six wks post op for endometrial cancer. Initially I was terrified upon diganoses, and suffered sleepless nights etc, despite many assurances from many experts that I would be ok.
My cancer was endometrail adenacarcinoma, stage 1b, grade 2., a rather slow moving cancer, but not the slowest.
Anyway, the surgery went well the, team finding the cancer just where it was supposed to be and not elsewhere, the biopsy tests came back saying I was 92% cured and with approx. 2 doses of ten minute radiotherapy ,(which we must do 120 mile round trip to have administered plus another,' discussion trip,') the chances are I would then be 99%,' cured,' !
Cant help it, I was so relieved to hear these % quoted to me, I have slept like a baby since, and am starting to enjoy life again instead of worrying over a thousand hypothesis and I am sure just the peace of mind of a high per cent prognosis is a therapy in itself.
It has helped me think POSITIVE, at 63yrs old, they now say I am more likely to die of old age!
