The NHS can really leave me feeling massively let down sometimes. Some say things to you that they either don't mean or they are too forgetful to actually do their jobs properly. It's just so aggravating.
Perhaps they don't realise how much we hold on to things, especially what is likely to happen next with our care. When I get told to make an appointment for 6 months time so they can run blood tests and scans, you can bet that those words will rattle around my head everyday for the next 6 months waiting for the chance to get another look at whether the disease has returned and progressed or not. There is nothing else to hang onto.
So when you ask why the appointment is over when they haven't even mentioned taking blood from me, and all you get back is a confused look, suspicion started to run wild inside you. Pressed about the scans I was told I'd be entitled to given that a primary site for my cancer, that has been labelled 'skin cancer' for lack of insight and a better 'best guess', has never been identified, I was then told that follow-up scans aren't routine. Deception seems to be quite routine however. Lucky us.
They'll only offer you a scan when it's too late. It's just a guide for the surgeons. We're not interested in helping to actually keep you alive. We're quite happy with our 'ignorance is bliss' attitude. After-all, we're not the ones with cancer.
I then get told that they're not even sure how I would go about getting a scan privately. I suppose I can believe that. I can see there attitude is that they don't want to waste money on patients who don't present with symptoms. So you're gonna have to come back when you have tumours popping out of every nook and cranny. Riiiiiiiiight.
Now it's up to the oncologist who told me to chase up a clinical trial, that I soon discovered had been running for 4 years and was about to end in the next 2 months. Gee, thanks dude. That's so incredibly fucking helpful of you. More deceit.
Might be time to find a more bothered hospital in London, than this bullshit.
