In fact, I'm not sure I am still. But I am a sad, frustrated, Mum of a beautiful 13 yr old with a (Insert your own swear-word here) brain tumour! (Astrocytoma)
At the moment, we are in the situation where my daughter has had x3** ops over the summer holiday - non of which have actually helped her - she has recovered well from them so is fortunate enough to be well enough to go to school and I return to work. However, I find this has left me screaming on the inside. Because she is well and in school everyone around me has adopted a kind of 'Oh well' back to normality' attitude which I am increasingly struggling to cope with. Don't get me wrong, of course, I am delighted at her recovery and at how well she is at the moment. I am just SO SCARED at how long this may last.
I know there is nothing anyone on this site can do to help, and Lord knows, you all have your own c**p to deal with, I just feel like I need to get it out there!
Thanks for reading.
** The 3 ops were: 1) Endoscopic biopsy (inconclusive) and insertion of drain/reservoir2) Removal of said drain/reservoir due to infection3) Open biopsy/craniotomy with view to debaulk. Unsuccessful on both counts.
