Smaller side effects not talked about so much...

1 minute read time.

What they don’t tell you

Not quite halfway through this chemo shite and these are my observations on common side effects that no-one talks about too much as people tend to focus on the bigger effects. Which is quite right. A lot of people end up in hospital on a regular basis through having this treatment either very bad side effects, bloods low, infections etc.

 

It hit me today about the smaller side effects that have such a dramatic effect on our everyday lives.

 

Crying

OMG the crying comes on and you can do nothing about it. It hits you like a ten ton lorry, boom… there you go, take that. You feel very, very sorry for yourself.

Tiredness/Lethergy

It wears you down, everything small thing you try to do it seems it like climbing a mountain. I walked up the stairs and had to sit down on the bed as I was puffing and panting with the effort of the walking.

Weariness

No energy to do anything, you just want to sit and do nothing

Concentration

No concentration for a few days. I will get up to get something and stop and think ‘what was I going to do or get?’

Horrible tasting mouth

Urgh , coffee, tea everything tastes horrid. Does go after a few days and settles down.

Hot Flushes!!

Didn’t suffer with this during menopause but now… duvet thrown off in the middle of the night!! Hot flushes during the day just sudden sweats, horrible!!

Runny Nose

No hairs up my nose so it likes to ‘run’ more than normal.Always have a tissue to hand.

NO HAIR!!!!

Nearly all of my hair has gone and I feel I’m getting used to it in as much as I will answer the door to the postman/postlady and think nothing off it and wonder why they look embarrassed!! Poor things. AND the hair below…. go to the loo and wipe myself with tissue and bits of tissue stick to my skin as no hair!!! Sorry needs to be talked about .. these are facts!!!

 

These are my main side effects. Nothing as bad as some people I do understand but, they get me down. I just want my life back and I keep thinking I have got until at least June/July before the finish line.

Anonymous
  • Little things, but the sccumulate till you just can’t take even the slightest extra thing! 

    Have you had things gettinginto your eyes from lack of eyelashes?

    Hugs xxxxx

  • FormerMember
    FormerMember

    Hi there Taralou

    I’m a new member here as of like 10 mins ago, I created an account, logging in & your post “smaller side effects no one talks about” was what came up first. It was such a relief to read your post, that decided to share one of the many side effects that I am currently experiencing on the medications I’m currently taking for cancer treatment. (I hope I’m in the right group here ). The one side effects that I’ve been getting and has caused a lot of concern for me is “Memory Loss”. I had no idea the medication had such a huge impact on my memory, I was never told it would /could be a side effect. It affected me in such a negative way, as I couldn’t understand why I was forgetting the simplest of things like people’s names, it was having an impact on my work abilities, I felt really stupid at times and was made to feel stupid because I couldn’t remember certain things or 2 mins after being given an instruction I would forget what I was told to do. I started losing my confidence, I’ve never been an academic person but I am by no means stupid. I then began to think maybe there is another underlying problem such as early Dementia and that really scared me to no end.

    Yesterday I went to see a Dr, not about this, but for something else related to my cancer treatment. At the end of my consultation, I mentioned my concerns about my memory loss I was experiencing and that I was really concerned as it was having a huge impact on my daily life, both at home and at work to the extent I was getting quite depressed about it. He then explained that the medication I’m taking does have that impact on some people and no I didn’t have any underlying problems. He then took the time to discuss other side effects that may happen which I might not be aware of. I felt like a whole new person when I left the surgery. I was so relieved to hear that I was not losing the plot and my brain is still working. Moving forward I have to try and find ways to deal with this little glitch, I was told by the Dr to start writing things down to keep me on track both at home and at work, so I’m off to buy a little note pad today. I just hope I’ll remenber to take it with me to work

    I hope by me sharing my story, it will help someone else who may be experiencing the same thing but like me, didn’t think about the medications causing the problem.

  • FormerMember
    FormerMember

    Hi there   Taralou .   Welcome to the website.  You did well to talk to the doctor and identify side effects when we know we can deal with this stuff and go forward.  Please look around this site there are many folks posting and you have a world of information at the click of the mouse.   Are you in touch with Macmillan nurse as they are brilliant also the  08088080000 number for all sorts of help.At the bottom of the page are links to all sorts -- the download leaflets are on ---  be.Macmillan.   JOIN as many post site as you wish to gain knowledge or just a supportive chat there are lots of subject matter to explore.   All the best pchad.

  • Hi pchad

    Many thanks for your comments however, I am not new to the site, have been on here for some months now!!  I have not  talked to my doctor either about the side effects these are completely my observations.

    I know my way around the site as I have a blog and also started the Craft thread which is very successful.

    I am not in need of the Macmillan nurses at the moment but do have one who has been with me from the beginning.

    I am sorry if this has sounded negatve as it is not meant to and I am sure you mean well but I must wonder if you thought I am someone else you should have responded to.

    Take care

  • We’d probably never have the treatment if we knew what was to come. The chemo ... for me was the easy part looking back. It’s when all the treatment’s done & you get that terrible fear that you’re all alone, & just waiting for it to come back. But on a much brighter note I loved having no hair. I was a bit shocked at first when people used let me go first in the queue, but decided to take advantage of the situation. We were also allowed to go to the front of the queue at the hospital for our bloods too, there was nothing on earth like that walk of fame.

    All the very best to you xxx