Community News Blog

This is where you can find out about all the amazing things going on in the Online Community. It's where you'll find news about events and awareness months; ways to get involved with Macmillan and up-to-date campaigning news from Macmillan HQ.

Latest Entries
  • THE 2011 MACMILLAN CALENDAR IS BACK!

     

    Another fantastic calendar has just been launched by the ‘It’s Just a Six Letter Word’, a group of people with cancer and also carers who met through our online community.

    Community member Xpatx decided to do the first charity calendar last year after talking in the chat room with friends. As you may already know it was was based on the Macmillan Good Day campaign, raising over £3,000

    Xpatx says, "This year we wanted to do the same, but make it bigger and better and raise more money!!  Macmillan are celebrating their 100th birthday in 2011 so we have used this as our theme for the 2011 calendar".

    This funky and freshly designed calendar was put together by designers at Deep, paper suppliers Antalis, printers Identity print, Signiture Print Finishers, PR company Kavannagh communication for free.

    All money raised from the calendars will be donated to Macmillan (minus fee taken by Missionfish to process the donations).  Postage has been set at £1.00 however if any surplus monies are generated from postage costs these too will be donated to Macmillan.

    So make sure you click on the link below to check out the calendar and help raise as much money as possible for Macmillan!

    http://cgi.ebay.co.uk/ws/eBayISAPI.dll?ViewItem&item=200550443994

    http://www.itsjustasixletterword.co.uk/

     

     

     

     

     

     

     

     

  • Cancer Drug Fund Consultation - Tell us your thoughts

    Hello everyone,

    You may remember that at the end of November clairenwilliams posted a blog about the Government’s new Cancer Drug Fund and what you can do to support Macmillan’s campaign to make sure it works for people with rarer cancers.

    The Government is creating the Cancer Drug Fund, which will be launched on April 1st 2011, to make it possible for more cancer patients to get hold of the medicines they need. 

    As Claire said, they are currently asking for thoughts on how it should work and Macmillan is writing to the Government to say we think:

    1.    The Cancer Drug Fund should help patients with rarer cancers
    2.    Patients should be supported to make decisions about their treatment options
    3.    Decisions about who gets funding should be made in a timely and transparent way
    4.    Information should be collected on the decisions that are made to make sure they’re fair.

    The Government has asked what information cancer patients will need to feel they fully understand the fund and what their treatment options are. In our first draft to this question we’ve said:

    •    Patients should be offered personalised information to help them choose which treatment to have
    •    Patients should be offered information about both the benefits and risks of different treatments
    •    Patients should be offered face-to-face support to understand the information they are given about their treatment options
    •    Doctors and nurses should be trained to deliver information to patients about what options they have for treatment.

    We would really like to know what you think of what we’re planning to say and also if you could let us know:

    What do YOU think about the new Cancer Drug Fund?

    What do YOU think doctors or nurses should tell cancer patients about the treatments that are available to them?

    If you, a loved one, or someone you care for has had a good OR bad experience of accessing support from a doctor or nurse to understand treatment options
    .

    We’d also really like to hear if you, a loved one or someone you care for has experience of accessing or trying to access the Interim Cancer Drug Fund – the £50 million pot of money the Government made available in October to bridge the gap until the main fund is in place.

    We really want to make sure that we listen to YOU, the people who this will directly effect, so please leave your comments here or email campaigns@macmillan.org.uk 

  • The Biggest Thank You

    As some of you might be aware, it’s Macmillan’s centenary year in 2011. To help mark the occasion we’ve created a website called the Biggest Thank You:
    www.biggestthankyou.org.uk

    It gives people affected by cancer a place to come together and thank those who are special to them and helped during their cancer experience. It could be a loved one, a nurse or a friend. The site also gives us at Macmillan a chance to say thank you to all our volunteers, community members, partners, supporters and colleagues who have helped us achieve so much, and will continue to help us going forward for the years to come.

    The Biggest Thank You site went live earlier this week and will be publicised to the wider public in the new year, but as we know lots of you on the Online Community are always really keen to provide your constructive feedback, we’d love to hear what you think of the site – please email your comments to biggestthankyou@macmillan.org.uk and we’ll try to get back to you asap.

    Thanks,

    Rebecca.

  • Christmas on the Community

    Hello all,

    Firstly I hope that you are all having the best Christmas that you can. I know that this is a really hard time of year for so many of you, and I want you to know that I'm thinking about you all over this time.

    As you may know, the Community team are not at work over the Christmas period, however we do have out-of-hours moderators who will be covering the Community.

    Emelia and I will be checking in periodically, so if there are any problems, as well as reporting them to community@macmillan.org.uk , please also try to take the time to send a private message to both Emelia AND I, to ensure that we can deal with your problems as effectively as possible.

    I hope that you all have a peaceful and restful Christmas and we'll see you all in the New Year - may it bring only good things to you all.

    Best,

    Rebecca

  • New Year 2011

    Hello everyone,

    The admin team are back from our winter break and can't wait to get cracking with everything that's going on in the Community this year. We certainly missed you over the holidays, and I'm sure you missed us too (!)

    2011 is Macmillan's centenary year so keep an eye out for lots of exciting things happening to celebrate this big birthday and milestone.

    As part of the program for the Community, we'll be upgrading the site for you, in response to all of your complaints and suggestions over the last year. We've read, we've listened and I think you'll be really pleased with the results.

    We will also be bringing you a Community Newsletter which will be winging its way into your inboxes in a couple of weeks. It'll be crammed with information about what to expect from the coming months in the Community and across Macmillan as a whole, and we'd really like to hear your ideas on the sorts of things we should be including. Once you've read and enjoyed your Community Newsletter, why not tell us how we've done by emailing community@macmillan.org.uk with your thoughts?

    There's also a really exciting program of web chats and live Q&A's coming up this year with a wide range of hosts from Macmillan nurses to fundraisers and even a public figure (watch this space!). If there's a subject that you'd like to see covered in a web chat then please let me know and I'll see what I can do to make your wishes come true.

    My new year's resolutions are to be positive, save some money and take time for others. What are your resolutions this year and what are your hopes for the future? Let me know by commenting below.

    Finally, I'd like to thank each of you who took the time to report a problem, pledged their support for one of our campaigns, challenged a spammer, raised money or offered support to another member in 2010. Here's to another year on the Macmillan Community!

    Cheers,

    Rebecca.