Hi been looking on here for a while but not been brave enough to post .
My husband last August was diagnosed with a low grade glioma after experiencing some plastic like smells. We were told that this was focal epilepsy caused by the tumor and he was consequently put on medication and we were scheduled for a further scan 3 moths later . 3 months came and the scan sadly showed that it wasn't as they originally thought a slow growing tumor and actually was growing rapidly . We were booked to see the neurosurgeon in Derriford and he said the best bet was to have an awake craniotomy to try and remove as much as they could and they could also see what type of tumor we were then dealing with .after several tests scans mind mapping the operation was performed on the 18 th December. In the end they didn't do the awake bit as my husband had a bleed so they performed the operation in the safest way they could . He did really well after the surgery and amazed us all with how he coped with everything . On Christmas Eve we were givin the devastating news that the tumor was in fact a grade 3 Anaplastic astrocytoma . ( funny how quickly you get use to using all these medical terminology in your every day lives isn't it ?) in the mean time news years day found us at Treliske as on top of everything he had a dvt from the operation so he is now on Fragmin for the next 6 months but that seems to be sorting that out .
Anyway in January we met with our oncologist and it was decided that 6 weeks of radiotherapy was the Action plan . Again he has dealt and coped so well with the treatment was tired and a bit nauseous and apart from the emotional stuff again really dealt with everything they threw at him . We finished the radiotherapy on the 18 th March and they said that the pinnacle is generally about 2 weeks later. He was definitely more tired and generally dozed in the afternoon and seemed a lot more emotional understandably . Anyway we saw our Oncologist this week just to see how things are going and he did mention that the last 2 weeks he has been experiencing some blurry vision and bumping into things mainly on his left side the tumor is on his right . She said it was probably still the radiotherapy still working and not to be alarmed but obviously they can't scan until June as there will still be bruising swelling etc. so wouldn't. Be able to really tell what's happening . The same with having an eye test as things could change . I suppose I just wondered if anyone else has experienced anything like this . It has really unnerved my husband and totally wobbled me as he sometimes literally can't see things that are right in front of him . I'm sure it's what she said but just heartbreaking to see my very on the ball husband getting so upset and frustrated and scared. : (
I have been trying to be positive and we talk about everything hopes fears worries but I just don't know what to do I feel so tired and angry that this has happened to us then selfish as there are a lot of people who aren't as lucky as us and can't have treatments operations etc. it's been a long 9 months and our lives have totally changed . Sorry feeling a bit sorry for myself need to give myself a good talking too that generally does the trick . Anyway thanks for letting me share and vent any advice welcome
Xx
Hello,
I've just seen your post and wanted to reply. You will see my experience on my profile-
Gosh you have been through a lot over the last few months and it's great that you have come on here now that you feel you can. It's a great place to get support/reassurAnce or to have a rant- as I have found over the past few years!
I can't say that my husband has experienced the exact symptoms that your husband is currently experiencing but I can tell you that even now he still suffers from dizziness and other odd symptoms that cause him a lot of anxiety until he tells his oncologist/neurologist. More often than not he receives that explanation also.
Thankfully to date his tumour had remained stable. But there have been so many occasions when we have worried something was happening due to various symptoms which he has experienced!
So I suppose to sum up you are always right to speak to one of your husbands team when these symptoms occur (because you would never know what is going on) but it is normal for symptoms to happen as we have found that are a result of the interference that has gone on in your husbands brain.
I hope this helps 
there will probably be someone on here who has more specific experience of the symptoms you have described but I just wanted to say hello and let you know you are not alone. It's difficult and frightening and often frustrating this caring role- so feel free to get in touch any time!! Even just to let your thoughts out!
I really hope that things settle for you and your husband!
Xx
