Valentinex2's blog

  • Day 5 of lenalidamide!

    FormerMember
    FormerMember

    Well - I am still here - only side effect I have so far is a little bit of itching on my forhead and scalp - guess I can cope with that.  I also have to take Allipurinol - which I thought was odd as hubby gets that for his gout but apparently dead cancer cells turn into protein which then turns into uric acid - so it is to stop that from building up.  Sure as heck don't want gout on top of everything else.

    Energy levels…

  • Took the pill last night - still here today

    FormerMember
    FormerMember

    Well - still alive today - Don't know what I thought was going to happen.  Feel okay today but last night after I took the first lenalidamide I was very apprehensive.  Anyway - got to sleep okay and was very relieved to waken up this morning.  Went to hospital for weekly platelet input.  It is a horrible day here in Scotland - wet - sleet blowing through and very dark and dismal.  Bought a short pretty wig today in anticipation…

  • Start the pills today

    FormerMember
    FormerMember

    Well it is the day of reckoning  today and I take my first lenalidamide tablet tonight.  Dreading it but it has to be done. Sitting in my apartment looking out at the sea and wondering if I will still be here tomorrow - talk about dramatic, I know!  If this is what I am like about taking the tablets what will I be like when the real chemo starts?  Must get a grip and pretend it is an adventure!

    Hopefully will post tomorrow…

  • Journey towards BMT

    FormerMember
    FormerMember

    Hi all

    Was back at the Western Gerneral in Edinburgh on Tuesday and I have 'the pills'  I am not starting them until next Tuesday as husband is night shift this week and was worried in case I took a bad reaction and he was not here to take me to hospital.  I have looked at them and they look harmless - just small white capsules - hard to imagine the poison that is inside this little capsule.  I have a vision of…

  • Monday again!

    FormerMember
    FormerMember

    Hi all

    Well I have spent the weekend reading all I can about bone marrow transplants - partcularly as I will need an unrelated donor due to non existence of siblings. Wish I hadn't bothered - it sounds as much fun as having my eyes burnt out with red hot needles.

    Also been practising for hair loss - trying on wig - still think it looks like a wig and also trying different ways to tie scarves and  bought a few from…