Still feel exhausted by the last few months and think it feels worse as the dark nights draw close. Where did our summer go again? I think this is the worst part, when you are back and forth to the hospital for treatment you seem to go from one day to the next not realising what day it is. Feel bad because the kids had no summer with us again, not sure how they cope, oh here we go again, I can hear them say. This looks like it will go on for another year and whilst I am glad to be able to sat that, it would just be nice to stop the earth for a while and get off.
Got a email today and at last looks like the ombudsman is actually looking at our case, been promised a reply in the next two weeks, just need hubbys work to get their finger out and maybe that would end some of our stresses.
Today I spoke to some really great people on this site and even after all these years of doing this I was still able to get some advice. Because of those people I decided to stop complaining about not getting support and to do something positive about it instead. So I contacted a certain agency and now I am waiting on their reply. Maybe if we get some support from them then things will get a little bit easier.
It is hard to keep a positive outlook at times when every door you knock at turns you away because they have never dealt with a case like yours. Well like someone said to me today, just because we are 'a - typical' should not mean that someone out there cannot find a way to help us.
So to those I chatted with today, I thank from the bottom of my heart. Probably will find something else gets me down next week, but one problem gone would be a godsend.
ray xxxx
