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My journey through ovarian cancer - findings, tips and tricks.
The four monthly oncologist's appointment arrived. As usual sat and waited and waited despite my appointment according to the receptionist being the first. Another person went ahead of me - on enquiring I was told three appointments could be given for the same time! What the logic is in this arrangement I cannot imagine - it only leads to a rise in frustration waiting extra time, annoyance, raised stress levels - not to mention car parking fees.
Well the results were worth waiting for - down to just over 8!! Next time not even a blood test in four months. My husband turned from a highly anxious person to Mr Happy. Pity I had to live with Mr Anxious driving me nuts and highly stressed beforehand! Dealing with his anxiety has at time been worse than the chemo etc.
Following my oncology appointment today I dont have to go back until the beginning of December . Great news. Had a different doctor yet again - funny only ever since the named consultant twice in all the time I have been under her.
He kindly explained a few things that I had been concerned about and my CA125 reading is only 10!!! So it looks as though I need a lot of execise to get rid of my ballooned stomach! With this in mind I walked to the pub for a quick drink to celebrate. Exercise is good they say !
Having been told I had a nodule in my stomach following the CT scan I was alarmed as nothing had been mentioned previously. It is 13mm and could be scar tissue. It has not got larger since the chemo. There is another the same size in the skin of the bowel and I am told it is not in the bowel. My Ca125 results are good - down to 8.8 and 30 is normal. I am told the Ca125 blood test will also monitor the one outside the bowel.
My blood will be tested a week before my next appointment and a follow up scan - so I am keeping my fingers crossed.
In the meantime my Mac nurse is going to get the doctor to confirm on my medical record that he considers me fit to travel. Some insurance companies request this information. Now all I can do is try and remember which company I was looking up when searching for holiday insurance!
Eyes are still not right from cataract operation. but it is early days.
It's there in black and white on the insurance letter - I am in remission!
I had been complaining for some months now that I was feeling as though I was walking like a drunk. Well I collapsed. I was just stood in a crowd not doing anything and down I went and got stretchered off. My pulse was racing.
I was sent home with instructions if I didnt feel well not to bother with the doctor but to dial for emergency services. I took it easy but my heart was racing and I had to go and see the doctor. The ECG was ok, and he took another blood test. My pulse was racing and he gave me some beta blockers. These worked! My heart stopped racing, the dull ache in my head and chest went. At night I no longer wake up feeling like a furnace.
During my chemo my blood pressure was taken only a couple of times. On reflection I feel perhaps this should also be done when they do the blood test.
I suppose now the doctor will have to find the root cause of my racing pulse. I am not too worried as I intend booking a holiday as I am feeling well - the best I have been in a very long time.
Went for the results of my CT scan to be told there was a nodule still and I would be monitored. I saw the large melon size one on the right hand side and another about the size of a penny on the left hand side when they were doing my ultra sound scan. I understood both ovaries and tubes were being taken out........................... so where is this nodule. Why didnt they take it out when they had me on the operating table.
I am completely shocked and bewildered. They weren't going to give me the last chemo so I took this as a sure sign that all was well. I have to go for a blood test in January. Now I will be worried all the time about this nodule - why couldnt they have taken it our!
Why wasn't I told about this nodule. I was offered Carboplatin +/- Taxol. I would definitely have had the Taxol if I had known about the nodule. The oncologist recommended just the Carboplatin as there was no sign of spreading or cancer cells in the wash.
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© Macmillan Cancer Support 2015
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