Where has time gone! Only one more week of chemo to come. I don't like to be a wimp but I must admit I have had a rough time the last to to three weeks. My consultant came and sat next to me while i was in hospital a week past Thursday and said with a smile "oh at last you like a patient on high dose chemotherapy" he did say with a smile. At the time I was having 3 units of blood for low Hb 7.6. Which is a we bit low for a 100 kg nearly 2 meter tall male! Most of the last week is a blur of sleep, headaches and being knackered. Only able to walk a few meters, even cleaning my teeth makes me breathless. Hey ho! I know I have got through this very well, much better than they or I thought I would. Fingers crossed for the last two chemos next week. ... Had a good talk with the consultant without his huge group of follow ons being there..... He gave me the low own on what to expect re the eye radiotherapy, red swollen, dry, and gritty and quickly forming cataracts. I must admit of being a bit worried about the side effects but I just have to get through it. He says I will not manage to do it as an out patient so will be admitted for 4 nights each of the 4 weeks for the 20 sessions. I think I might get a bit board! He also brought back to me the pension forms I have had to fill in to get my pension pots ASAP as my life expectancy may be less than year. Seeing it written down was hard. The best one stated greater than 70% death rate within 3 years. Bearing in mind I have had this for a year already I am starting to have a bit of difficulty emotionally so gave in yesterday and started on Diazepam as I need for anxiety. Hopefully I will get a gip of it soon.
I have had a couple of really nice if tiring days out with the wife, especially this Thursday when we wen to Largs on the West coast. A lovely sunny cold dry winter day. We had lunch at a lovely Art Deco Italian restaurant called Nardinnies (spelling might be wrong) a little retail therapy then a tub of home made Italian ice cream watching the sun go down over the islands. Beautiful. So life not all bad. Keep smiling, laughing and above all hold on to hope with both hands.
magpie mike
Will be thining of you with the last of your chemos. Nothing like a trip to Largs to lift the spirits. Thats where we took my mum the week she discovered she had a recurrence. Glad you have been open to take the help you need.
|Hope the surgical team can keep pushing the boundaries for you.
Don't be hard on yourself Mr , you are doing great and entitled to have bad days with all that chemical warfare and side effects. I'm heading towards my last chemo too and like you will be glad to see the back of those side effects. I've got deep frying to follow , but you canny lad have Xmen treatment !! I'm impressed, now that's proper Geordie bravery :)
Stay strong and having good days out . Lots of Love to you. Hope your family are well too
Hi sassy and court. Thank you for your good wishes. Unfortunately as I am currently neutropeanic I can't have the last of my chemo until the middle of next week.
However the trip to Glasgow was not totally wasted as they I'd both a colonoscopy AND an gastrict endoscopy. I only hope they cleaned the scope between investigations. It felt like a test run for a new Virgin Atlantic train it was the biggest endoscopy some. Have ever seen. Brought tears to my eyes just looking at it! The god news they only found some gastritis caused by the side effects of the Chemo .
In some respects I am pleased for the mini break. I have not had a good two to four weeks and feel quite week and tired so theses extra few days might help me get some energy back before the final two nasty sessions next week.
Largs is associated very much with my cancers as it appears it is with your mother. I went there with my dogs, no wife, the day before my first chemo and radiotherapy or my previous e cancer. I just st outside Nardinies or walked along the prom thinking..
I do like it there..
Hi Sassy, have you had your last chemo yet? It will be a relief in one respects when that is all over. I found out the other day the definition of high dose methotrexate was 500g per m2 of body mass. I am now having12,000g per m2 . No wonder my insult ant commented last week that at last I look like some one on high dose chemo! Apparently they are amazed how well I have coped physically so far.. That all bodes well if and when I need a stem cell transplant.
Like you Sassy I start getting my eyes fried at the beginning of January, 20 sessions over 4 weeks. I must admit m not really looking forward to it. I have already started getting cataracts and will get them quite quickly once radio therapy starts.
Weather good here o might get back to Largs later in the week!
Take care and please keep in touch. I will be thinking of you all and hope treatment is less of a tray re than you expect.. Love and best wishes. Magpie Mike xx
Hi again . I have just re read my last post. Sorry for al the spelling mistakes and that the auto word finder came up with some words.. I am sure you had fun trying to work out what the heck I meant at times lol.
