A Blog For Carers: There's A Vibe in My Soup

2 minute read time.

Blog for Carers II:  There is a Vibe in my Soup

Are you sitting comfortably?  Got the slippers on?  The fire crackling in the hearth?

Here is a little medical drama for your entertainment – it does have a reasonably happy ending, never fear.  I have simplified the story a little – I have got to get going with the next round of soup (soup-opera?).

There are three doctors, scattered across the country, who recommend three different treatments for the same patient.  There is professional pride at stake here but, most importantly, there is a very sick, very brave patient who has a loving but meddlesome wife (that’s me, of course.)  None of the three treatments being offered are life saving, but two offer the hope of a longer survival time and one of these is minimally invasive and very safe.  The third, the only one on offer locally, can have complications, is not reversible and is a ‘contraindication’ (useful medical jargon that ) to at least one of the other treatments.  This third option is as ‘cheap as chips’.

 You are already ahead of me – you know what is going to happen, don’t you? 

Yes, very sick, brave patient is recommended the ‘cheap as chips’ version.

But the drama doesn’t stop there: at the eleventh hour, expert at the other end of the country says ‘cheap as chips’ version would not be suitable for our hero at all... and he will see our hero at his state-of-the-art place of work which is several hundred miles away. 

There is a catch, of course, and to give you a hint, the meddlesome wife is wondering, as she stirs the soup, whether this will mean re-mortgaging  …and will the dogs be happy living in a ‘yurt’ should she have to sell the house …

As medical dramas go, it is not quite up there with ER but there is a reasonably satisfactory ending to this episode in that we have at least the chance of a treatment which should increase both quality of life and survival time – a little. 

Let us hope that the story-line runs as long as the ER series – and that there will be the boxed set on the shelves for many Christmases to come.

And to end on an even more positive note, one of the in-laws has organized for Reiki thoughts to be sent remotely from a master who is teaching in a former Soviet country. 

Well, that’s a relief.

Was that a vibe that dropped in the soup?

 

 

Anonymous
  • FormerMember
    FormerMember

    buzzie

    have you used you tube for your research? there's some good stuff there. and you can probably get reiki there ...

  • FormerMember
    FormerMember

    Oh Buzzie, what a terrible dilema to be in.....a yurt...at this time of the year!  How about going down the soup route?  Make it, sell it and make more.  Maybe, in time, you will have enough money to travel to the Big Onc's house and get the treatment your husband should be offered anyway.

    As for Master Reiki, if that is what helps your in-law cope so be it!  We have candles growing in bowls in some friends homes, buried something or others in other friends homes and I BELIEVE in every one of them....... If somebody said wearing a dead rat in my knickers all day would eradicate this horrible nightmare I would be wearing it now trust me!!

    The trouble is, we do have to be realistic.  Selling ones home for some 'extra' him/you time is something that has to be discussed fully between you....you know what I am saying!  I too would be cleaning the house and phoning the Hips and Estate Agent man and packing the boxes (multi tasking) if I thought it would mean a bit more than 'extra' time for hubby. !

    Go get yourself a fivers worth of lotto for tomorrow and I will cross my fingers and eyes for you both.

    Cherryl

  • FormerMember
    FormerMember

    From one meddlesome wife to another.  I wish you all the very best. I have been blogging about G's pivate treatment in Germany.  It was expensive, but it seems to have bought him some more time, when the NHS could offer nothing.  I made up my mind I would support whatever secision G makes about treatment, but the decision had to be his alone.

    I know that whatever happens now, as we scrimp along on our depleted savings, we both did everything we could to fight this vile disease.  A personal view I know.  There is never a one size fits all to these dilemas.

    PS have you applied to your PCT for funding for the prefered treatment?

  • FormerMember
    FormerMember

    Buzzie, its really bad that you have to

    think about remorgerging your home to

    get treatment for your hubby that you

    have both paid in for god knows how long

    in tax and national insurance. And they

    cant even guarantee if the treatment will

    work, how much longer are they talking

    about with the top treatment. I know like

    many you would sell your soul for your

    hubby to have more time, but will that

    time be quality time with no bad side

    effects, and time to enjoy life no matter

    how long, lots to think about , but having

    said that Buzzie you and your hubby must do what ever feels right.

    With Love Lucylee. xxxxx

  • FormerMember
    FormerMember

    Never fear - I don't think it is the yurt yet.  But I do agree with Daffie - money is just money but  a little extra time is beyond price.

    And don't get me wrong - we are grateful for all helping thoughts - even the remote reiki!  The soup kitchen is a great idea.  How about 'Soup for the Soul?'I haven't tried the rats in the knickers - anyone know if this works?

    Thanks for your kind comments - and thank you for the laugh Cheryl and Peter.  Despite my chirpy tone - there is not a lot of laughter at the moment.

    Daffie - I don't think the Health Trust will help - although  the treatment is NICE approved.  Time is too short to find someone who does it within the NHS and we are getting exhausted. It may all be clutching at straws- but while there is a straw to clutch ...

    Love to you all - and thanks for reading my drivel.