An intro?

1 minute read time.

Well, I've ended up here from following a link on You Tube, it's funny how when surfing the net at this time you end up looking at all sorts but, since my partner has been diagnosed these late night surf sessions have tended to have just one theme.

I guess today I feel a little low, I feel guilty for it too, I do whatever is necessary to make Steve as happy as possible and hide my sadness by busying myself out of sight but he went to bed at 9 tonight so a few hours alone, some thought provoking music and... well I guess we all get them.

I guess I am hoping that blogging will help me get my thoughts "in the open" I don't think I am looking for answers or reasons, in truth I don't know why or what I am writing, maybe today wasn't a good day to start but I have, I wont promise to blog daily and maybe not even regularly but I will try.

Steve, my partner has been keeping a blog on our old website, www.troubleonline.co.uk since he was diagnosed with a Glioblastoma Multiforme on 29th September this year, he's now in to his 3rd week of Radio and Chemo therapy, he doesn't seem to being too bad, it's almost business as usual really, do take a look at his blog though, his first blog after being doagnosed was around 1st October and he's been updating it almost daily since then,, I don't promise to do the same though.

Well thats enough of my warbling for one night, hope to be back soon.

Mark x

Anonymous
  • FormerMember
    FormerMember

    Hi Bobbie,

    First thing is welcome to the site, glad you found us but sorry you needed to. Its sounds as though you are going through much the same as we all do in the early stage, maybe feeling a bit lost, confued and looking for answers.

    Sorry to hear your partners is going through it at the moment but glad you are there for him, some of it maybe a brave face - but being positive really does help mate.

    What you have found is maybe the Best Cancer Support site on the net ! We are a group of Patients, Carers, Relatives and Friends, the one thing we have in common is we have all been affected by Cancer in some way.

    You will find Information, Support and care on here from people who do understand - we have been there or maybe we are still there now ourselves.

    So once again welcome to the Mac Family.

    Feel free to contact me any time if you need some help finding your way around the site.

    Take Care Mate

    Hugs to you and Steve

    John

  • FormerMember
    FormerMember

    Hi Mark,

    Welcome to Macland sorry about the circumstances.

    I couldnt have put it better than John. Stay on this site and you will find a lot of people only too willing to help in anyway we can to support you and Steve

    in everyway we can. There is always some one hear to listen and to talk.

    Take care and be safe Sarsfield.

  • FormerMember
    FormerMember

    Hi

    Sorry to hear of your partner's illness.

    My dad was diagnosed with stage iv glioblastoma after suffering a huge seizure six weeks ago. He's currently in his second week of RT and chemo. His tumour is inoperable and with treatment they're hoping to give him 2-3 months of life. I feel like I'm on a rollercoaster and can't get off.

    Good luck, it's a horrible journey to be on but I've found the support on this site to be invaluable.

  • FormerMember
    FormerMember

    Hi Folks thanks for your messages, I'm not sure i need answers as I have read more than I should have I think and whilst I like knowing whats going on I also want to not know as I cant worry about what i dont know.

    Deli, I really feel for you and I know it is a rollercoaster, Steve has had treatment No13 today and has started to lose his hair now, we are staying positiv and i do too when I am with steve but reality sinks in when he's not around and i realise the "bigger picture"  Steve keeps a blog too, it's on our old website, www.troubleonline.co.uk, please feel free to drop by.

    You aare right though, it's not a nice journey but, we have no choice, when life throws you lemons you make lemonade.... it's a crap saying but we have no choice...

  • FormerMember
    FormerMember

    Thanks. I went on to Steve's blog last night - it's really helpful actually as there's so much I want to ask my dad about his illness and how he's feeling but he doesn't like to talk about it. So to read about how it feels from the patient's perspective was really helpful.

    I cannot imagine how you feel - my dad is 64 and I feel his life is being taken 20 years too early but he's still had 30 more years than Steve has had.

    On a lighter note - dad has been mostly bald for years now but is moaning that his hair is actually growing back because he's not allowed to do his daily head shave (he shaves the bits around the edge that are left!) because of the RT. Oh, the irony.

    A good day for us now is one that doesn't involve continual retching, headaches or mini-fits. I have six children and live near the hospital where dad has his treatment so we are seeing him every day which has been lovely. Every cloud and all that.

    Keep going - I think we're probably stronger than we think we are and we'll do anything for our loved ones. I'm giving an Oscar-winning performance right now!

    Night night.