HI, I'VE BEEN 19 MONTHS IN REMISSION AND I HAVE LITTLE TO NO SALVIA,(STILL!)
HAS ANYONE ELSE THIS PROBLEM AS I WOULD LOVE TO KNOW HOW THEY ARE COPING!
FormerMember
Hi only finished my treatment 3 month ago but know exactly what you mean dont know if this will work for you but I got a product off the dentist of all people. It is called biotene oralbalance saliva replacement gel. I find it a lot better than all the products my doctor or consultant has advised.
Oh know its not that bad is it???? I m having left tonsil and lymph node (neck secondaries) cancer treated at the mo and they said i l loose my salivery glands on left side, cant quite imagine it really but already after 6 sessions of radio and 2 chemos i ve got a horrible mouth, dry, claggy and its just disgusting lol am trying to use mouth washes etc but i ve never liked them before this, if you find something to help pleaseeeee let me know could you?
19 months in remission tho???? thats brill and sooooooo comforting to know!
HI JILL, I HAD AGRESSIVE TREATMENT, RT TO BOTH SIDES OF NECK, THROAT AND BACK OF NOSE, PLUS A COMBINED CHEMOTHERAPY OF CISPLATIN AND 5FLUOROURACIC, 4 x 22HOURLY DOSES, SO DON'T WORRY TOO MUCH! READ THAT YOU WERE SICK WITH YOUR CHEMO,OMG, I WAS SOOO LUCKY AS I ONLY FELT SICK ONCE AND NO HAIR LOSS!
HOPEFULLY, YOU'LL BE DRIBBLING AGAIN SOON! LOL! OH, BY THE WAY, YOU CAN BUY THE BIOTENE AT BOOTS BUT IT'S NOT CHEAP, GET YOUR GP TO WRITE A SCRIPT!
Thanks for the message Alison, did you have a PEG fitted too! I wont loose my hair im on cisplatin only so thats great for me too!!!!!!
Im finding this peg the worst thing, its infected and i m loathed to use it!!! I can swallow fine at the mo but i lost 5 pound in weight this week so they want me to start using it slowly a feed a day split into 2, its a bloody nuisance!!!!!!
Must go now going for radio no 7, speak again soon i hope.
