how do you cope?

1 minute read time.

 

16 years ago, in April 2005 we lost our aunt to cancer, 9 years ago in 2002 we lost our grandfather to cancer, I hope that history will not repeat itself with our sister.

Our sister has special needs, since a febrile convulsion in 1980 where she lost all ability to read, write and spell etc, everything she was educated fell from her and she had to begin again at the age of 12 to 13.  She is now 43, and for the past 3 to 4 months of this year she has had issues keeping food down to the point she went to the doctors and cried take me to the hospital, fix me.  The hospital did tests over a few week period, and two weeks ago on the 29th June 2011 our parents visited us and told us the bad news that our special sister had cancer in her stomach, on the 9th July we found out after CTs and other tests and a colonoscopy, it was terminal.

Not sure on all the facts my parents accompanied our sister on Wednesday 13th July to the hospital to find out as much information as they could, with support from a social worker and Macmillan nurse they found out that the disease has spread to our sisters intestines.  Due to our sisters special needs everything had to be explained in layman's terms, easy English basically.

The outcome, our sister will have chemo every 3 weeks, in between each chemo session she will be assessed and spoke to say whether the chemo is working/agreeing with her.

IF the chemo doesn't work OR it is making our sister so terribly poorly she isn't getting to live any of her life comfortably during this period it WILL be stopped. 

Our sister has been given 1 month to 12 months to live without chemo, with chemo it could be a lot longer.  I have read some positive outcomes on this lovely Macmillan site and although not all happy endings, people have lived longer than the medics have told them they will live with stomach cancer. 

 

 

 

 

 

 

Anonymous
  • FormerMember
    FormerMember

    Hi Angec

    Sorry to hear yet another has joined this hell of a road.

    Good supportive family is a great help, more so in your sisters situation and we can see that she has that.

    Its not an easy journey to take but as Nic said, there are so many possitive stories and I too hope your sister is one of them.

    Stay tuned, always here to listen.

    Shaz ((((((XXXX)))))))

  • FormerMember
    FormerMember

    Sorry ladies I have just realised you replied to my blog...

    thanks nic  for your words yes we are all here for her, ive just updated my blog so i hope that sheds more light on up to date occasions.

    thanks shaz xx yes there are positive stories and i hope my sister is one of them, she didnt get through her first chemo very well, as many will sadly understand she felt rough from wednesday through til even sunday, looking weak, pale and tried not to drop off whilst enjoying her family around her.  she decided she didnt want another chemo i suppose this is something many cancer patients decide sometimes as it makes you feel and look rough around the edges but we hope the transfusion will change her mind and tests next week will show the chemo has helped will turn her around and make her endure another chemo session, fingers crossed we are here for her and respect any decisions she chooses.

    thanks again ladies xx