My Brave Mum

1 minute read time.

Hello to anyone reading this. My mum started complaining of shoulder pain in September 2010 it  was stopping her playing golf and it was really getting her down She went to the doctors and was sent to physiotherapy and given steroid injections for tennis elbow. The pain increased and mum looked tired and was sleeping downstairs in a chair. Mum had mentioned a small lump but no-one listened. Finally a family doctor listened and referred her to a specialist she had a biopsy and we were hit with the unthinkable secondary bone cancer. Since this time she has had various investigations and scans and they have found another lesion on her spine but to date they cannot find the primary (although they suspect it's on the lung). Mum has had one course of radiotherapy to her scapula and another to her spine. She has had reactions such as the runs, sickness, tiredness, sore throat loss of her voice, thrush in her mouth and more recently confusion. To be honest I am scared stiff of what is to come and each day I wake wondering if mum has slept, is in pain and will be able to get out of the house as she is currently confined to a chair! She has had a PET test today to try and locate the primary tumour and to see where else this evil cancer may be. We have been given a prognosis of months how many who knows? the next step is chemotherapy and I know mum will remain unwell during this there seems to just be no break from pain. I am hoping that someone can give me some positive advice to help during this process as currently I feel that my whole world is a wirl wind and I need to be positive and prepared for what is to come. My mum is only 62 and has 4 grandchildren she has everything to live for as she is a tough old bird.

Vicky xxx

 

Anonymous
  • FormerMember
    FormerMember

    Mum had the results of her PET test today and they have told her that they think the primary site is her lung. They have offered her chemotherapy 18 weeks intravenous and told her that the average life expectancy for lung cancer is 9 months and she has a 40-50% chance of exceeding this if the chemotherapy works. Wow they just roll these figures out and we are all left in shock. Mum decided she is going to give it a go and I hope and pray that it does work after going through everything so far. I am going with her on friday to look at wigs and she is having her her all cut off on Thursday to a short style so it wont be so much of a shock! Can anyone help with any the awful side effects that could result from the chemo ... is the sickness and the sore mouth the worst side effects or is there anything else that I need to know to look out for as I am determind to get mum well again xxxxxx

  • FormerMember
    FormerMember

    Hello,

    Thankyou so much for your message and I'm sorry to hear about your mum. I can relate to what your going through when your mum went to the doctors and how they didnt diagnose corectly straight away. When my mum had the brain turmour she was constantly sent home saying she had an ear infection and then a burst eardrum. This wasn't the case at all. I have learnt from my experinces that with one bit of doubt, always ask to see another doctor. You always have the right to, and be as pushy as you can to get more support. We pushed and pushed and now my mum has a nurse helping out at no cost to us..

    When my  mum first got cancer it was in her bowel(secondary nodules in lungs too) and she had to go through both chemo and radiotherapy. She did suffer the usual side effects and it included extreme fatigue and a few dizzy spells as well. It is very hard at the time but if your mum takes well to the treatment she will show signs of getting better.

    I had to go wig shopping with my mum too and we made it into a really special day of pampering and shopping and i think it might help if you do take the whole situation quite lightly even though its hard to.

    A month or so after the treatment had ended her hair started to grow back and she became a lot more stable and was able to go back to work and continue on as she had done before, even going to the gym!

    Chemo can have some amazing outcomes and i think having a positive outlook will help a lot.

    I will be here to support you through this and please don't hesitiate to message me if you need to know anything else about the treatment and I'll try to help.

    Beth x

  • FormerMember
    FormerMember

    Beth

    Thank you for such lovely encouragement and advise I would love my mum to be able to have a normalish type of life again. The hospital have telephoned today and she is going in tomorrow now to start her chemo - 9hrs tomorrow then a shorter visit on friday and Saturday. I feel very anxious and worried what side affects she may have as she had lots of horrible ones from the radiotherapy. I find it really hard as I have two children who are really close to their grandma and my youngest aged 10 is writing in her diary how upset she is and it is heartbreaking. I live one hour from my mum and I really feel your struggle Beth. How long was it after the chemotherapy that your mum started to get more symptoms ?   take care Vicky x

  • FormerMember
    FormerMember

    Hello,

    Thankyou for the advice in the other message you sent. They were very reasurring :)

    When my mum had chemo she got most side effects when she was on the treatment, much like your mum.The sickness and sore mouth your mum is experiencing is, as far as i know, the worst side effects and I didnt see anything worse than that.

    When the treatment had finished, the only side effect she experienced was fatigue.  She was very tired for a few weeks but then you could gradually see improvement and thats when she started back at work.

    Please don't worry if you don't see improvement straight after she has finished. Recovery time is different for everybody and I think the tiredness is just our bodys way of letting us know its healing.

    I know how hard it is to see your mum going through this  but we have to remember its a postive process. You have to remember these are only side effects and are only temporary.  When chemo is done, so will the effects of it.

    I hope this helps. I know i do ramble on. I sometimes find it hard to put down what im thinking into words! ive written this about 4 times!

    Hope you're doing ok,

    Beth x